A good blog about PPMS & acceptance

Primary progressive MS
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Hi gang,

This is very good and well worth reading. I too have found that acceptance has turned my experience of PPMS around. I know it’s not easy to do, especially for newly diagnosed, but it does make a huge difference once you are able to it.

Pat xx

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Hi Pat

Interesting read, thanks.

Pam x

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Isn’t that the truth. Mx

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Excellent Pat, those words are so wise and mean such a lot. I still have my days of real grief for what i feel i have lost but those are my sentiments too… not giving up but having hope and acceptance, i remember a couple of years ago feeling very depressed and then reading an article that said although you may not be able to change your situation but you can change your outlook…I still have ups and downs but that day was a real mile stone in my thinking and attitude.

Michelle x

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Thanks gang. I think it’s so true. It’s all about attitude.

It’s very easy to get ‘acceptance’ and ‘giving in’ mixed up. Acceptance isn’t giving in or surrendering, as it says in the blog. Acceptance is a positive state of mind. I learnt to enjoy my life once I accepted that this is my ‘new life’.

Pat xx

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Yes Pat. Having PPMS feels like we exist in a different galaxy. Some people don’t understand. It’s best to avoid those people, until they realise it isn’t a joke. Go Karting nearly wiped me out yesturday, but it was different to starring at wallpaper. Trying to enjoy normal things is tough enough.

Take it easy out there. Terry x

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Fabulous blog, thanks for sharing, Pat.

Yes, acceptance is the key.

My latest thing: when I’m down (and troubled and I need a helping etc etc) I say to myself things like “Cotton-picking, pesky MS”.

it just makes me chuckle to reduce it to the level of a cartoon baddie, rather than swearing and moaning.

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Thanks Pat, a good read and very easy to relate to

Sonia x

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Hope is such a big word. I set out little hopes each day; hope that it won’t rain when I go out on my Tramper. Hope that I’ll get through the day without falling. Hope that I can leave the flat tidy at the end of the day, and so on. I’ve just had a few off days but this morning I was met with renewed vigour. I think it was triggered by a bout of illness but I know these things are only temporary.

Thanks for the link Pat. these things are important. x

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