Ocrevus looks very good I am currently on copaxone which is ok, but feel ocrevus is much stronger and only taken twice a year
Anyone on this? How has it been?
1 Like
I am looking to start Ocrevus within 6 weeks or so, I’ll let you know how it goes.
1 Like
I am on ocrevus, I seem to tolerate it really well. The only thing I will say is, about 4-5 months before I’m due my next infusion I start to feel really crap. The good thing is my last scan had no changes from the year before which is what we want, take care Angie 
Hi, I’ve been on Ocrevus since 2021, it does its job with me. According to the MRI. Stops progression, so far.
However, there is now a shorter way to take it now which involes a 10min subcutaneous injection plus some monitoring which is far easier than the 5 hr infusion.
I’m hopeful to get that soon.
There is a very interesting book called “Up the Creek with a Paddle” by Mary Anne Boyle Bradley.
I’m not a doctor , Its your choice…
Good luck…
Hi Angie
I have the same problem on Ocrevus, about 4 weeks before my next infusion i feel the crap gap. The ms nurse reckons it doesnt exist but she don’t feel what we do. Everybody is different, 6 month may work for some, but not all. I try to put it outta my mind, not always easy when you are planning ya life…i want to try this 10 minute subcutaneous injection, not offered to me yet…good luck to you xx
Hiya, so I haven’t seen a consultant since my diagnosis in 2022. I’ve had a phone call once a year since, after speaking to a consultant in November and telling her about how I feel after 4-5 months after infusion she said she had been hearing the same thing from others on ocrevus. Like you say we are the ones going through it, take care Angie
Hi Angie
Yeah, consultants tend to bite off more than they can chew. I’ve seen my twice in nearly 4 years, my MS nurse 3 times and a couple of phone calls. That’s why I research things myself, they really aren’t much help, just facilitators of my dmt…
xx Darren
1 Like