Is anyone taking this drug and how are you getting on?
My neurologist wants me to start Gilenya after I have had three relapses in a year on Avonex, which I have been on since 2010.
Did you have any concerns/hesitate before starting it or was it an easy decision for you because of the way your RRMS is developing?
Did you experience bradycardia (slow heart rate) on your first dose? Did this go back to normal and have you experienced it again? Have you experienced any of the side effects such as nausea, headache, diarrhoea, increased infections (ie flu, colds) or the more serious ones including macular oedema, very serious infections, abnormal hearth rythms, and I also heard that some patients in the trials developed a type of skin cancer but these were removed.
Did you have the less serious side effects when you first started and have these now subsided?
Do you/your doctors think it’s working for you or is it too early to say?
Would be interested to hear people’s experiences.