Hi, I was diagnosed nearly two yrs ago and have pretty much been ok, until about four wks ago. I got a cold and virus which really knocked me for six. Since then I’ve had numbness reappear and tingling. I have started getting tired all the time again and as of yesterday my right eye has been a little blurry and my eyes feel a bit sore. Does anyone have any idea of whether or not this sounds as though its the aftermath of the virus from two wks ago or does it sound as though its a relapse?? X
viruses and infections can cause a flare up of symptoms, they are most likley not a true relapse just your bodys way of trying to get you to slow down. Take it easy and see if things improve…if not go and see your nurse or GP. Hope you feel better soon, look after yourself.
Slowing down is a nice thought lol. Thanks for responding, hopefully it’s not the start of a relapse then. Debs x
Doesn’t really matter why but obviously your having an exacerbation of your symptoms.
A little course of steroids may be in order and it might be time to start thinking of DMDs/ LDN or whatever. Simple fact, you must try to reduce the amount of attacks you possible will get. Each attack you will probably get better from but invariable it will leave a little damage. So the less attacks means the less damage.
Now comes the difficult part everyone has their own way of reducing/stopping attacks from Diet; HBO; LDN; DMDs; CCSVI; Mitox; there’s even some nutter who takes Snake Venom. Whatever floats your boat but findings yours is far from easy.
All the best with your search darlin; with any luck a cure is not that far away and you youngsters will be the beneficiaries.
Thanks George. I am due to see my nurse one June so I will talk to her about dmd’s. I was to quick to refuse them last year I think. Must say though, snake venom is definitely not an option!! Debs x
Yeh he’s a nut case the bloke who takes venom; oh just remembered it’s me! doh.
sounds like a pseuso relapse, not a proper one if it it was brought on by an infection
good idea to get on DMDs, you can research them all so that when your nurse offers you one, you’ll be closer to making a decision.
Thanks for all the responses, am very intrigued by the snake venom though!! It’s not something I’ve heard of. As far as dmd’s go I was offered cop axons and can’t remember the other one! I know it was a three times a week injection though. When I see the nurse next month I will ask to start them this time though. It was such a shock when I was offered them though, think I still thought everything was ok!! After sitting with the neurologist and being told how well I was doing in one breath and then talk about daily or three times weekly injections, I looked round the room thinking he was talking to somebody else lol!! Oh we’ll, reality check taken and have now seriously thought about treatments. At least I’ll be more prepared at this appointment. Thanks Again Debs x
This is just to quell your intrigue; no chance of getting it; phew she say’s!
Multiple Sclerosis (MS), cause and cure unknown. It is no wonder anyone in this position leans heavily on recognised medicine but tinkers with alternative therapies as they may give the sufferer something the Medical Profession cannot give them.
I am not advocating a sufferer should try any alternative remedy, which would be silly as there are many charlatans. I want to state facts regarding a treatment that others and I use, as I was diagnosed with MS in 1973 and have been taking a treatment using the venoms of three snakes since 1982.
I had such good, beneficial results, I decided this treatment should not dwindle and die but be made available for other sufferers, especially in the UK. In 1985 I obtained the dry freeze fractionated venom of these three snakes, the Cobra, Krait and Pit Viper. A friend, who was a biochemist, diluted this substance with saline solution and a Dr. Mount administered this drug we called (name taken out against rules) to thirty patients.
Not all these patients, friends, suffered from MS. One had Peripheral Neuritis, another suffered from a complaint called Sclorederma, one other suffered from Motor Neurone Disease (MND). I had no idea what the results would be on their particular complaint. I knew that this treatment alleviated tiredness, spasms, helped bladder control and stopped extremes of weather making the person feel like a wet rag. (Taken out) had no side effects that made the patient feel like a zombie? Could this substance also help these other complaints? I felt nobody should be refused; if medical reasons made it possible to try.
This was not a trial; nobody was given a fake substance as a placebo, a control, all received (Taken out). After four months the patients were categorised by Dr Mount on a scale of 1 to 4, one being excellent, two good, three average, four no results. The results, we felt, were a little disappointing with 33% of patients evaluated on one and two, 66% of patients were on 3 and 4.
A controlled trial lasting anything from six months to three years seems to be the only way to evaluate a drug at present. I am sceptical at this procedure with this treatment as there are reactions, mild, to introducing Toxins into the body and any substance given as a placebo to mimic the (Taken out) is not really a placebo. Still this is a point that I am sure could be overcome.
Where does this leave (Taken out), which has never had any controlled trial, has better results, does not have side effects and costs only £50 per patient; per year? In ten years time when there are many more sufferers, some brilliant researcher will find a fraction of snake venom that has beneficial results on the disease process. They will be given the Nobel Prize, a good job and pat on the back.
Do I sound bitter, yes I am? The one person who knows more about this substance than anyone is a 92-year-old man called Bill Haast. He is my mentor, has given me twenty more good useful years. No matter how much I want him to be here in another 100 years, even venom will not make him, all his vast experience will be lost.
After twenty years the people who still take this treatment do not do so because someone say’s it will do them good, a placebo. We continue to take it because we have proved, if only to ourselves, it does have beneficial results.
I have no control whatsoever and have not mentioned this treatment to anyone for over 10 years.
The snake is always been regarded as a symbol of evil. Why are two snakes coiled around a pole used as the medical symbol of the World? A question for Christians, could someone explain the writings in the Bible, Mark, Chapter16, Verse 18. I know the Bible is very ambiguous, means different thing to different people, but it does seem a strange thing for Jesus to say after rising from the grave, ‘They shall take up serpents, and any deadly thing will not harm them’?
Newton’s Law of motion is ‘every action has an equal and opposite reaction’. If you think a hot cup of tea actually cools you; X-rays can cause cancer, they are used also to treat cancer; Aspirin is used to bring temperature down but an overdose causes pyrexia. The same philosophy applies to this treatment, you are given a small amount; 1 part venom to 4000 saline, of a natural toxic substance that builds up your own immune structure; I think.
I know your thinking – ‘What is the intention of this note’. I would like someone, with medical knowledge to instigate real trials into this substance or fraction of this substance?
Venoms are used for many complaints already, are we to wait? The answer could be found before the cause, so let us look for the answer!
I’m sorry this is such a long message but I must tell you about the latest. We were running out of supplies and America was not going to supply us anymore. One of the other girls, I’ll call her Lesley; because that’s her name ran out at the end of November. About this time I heard of a place in Germany that could supply nearly the same. I say nearly as it’s not the venom of the Krait, it’s replaced by the venom of the Rattle Snake.
To cut a very long story short Lesley came off and by Christmas she was feeling unwell and falling asleep at the drop of a hat. Remember this is the first time she has felt like this in twenty years. She was still mobile; her husband rang me and was very upset. We eventually received supplies from Denmark, I told you I was cutting a long story short, and she started immediately. This would be about the middle of February. I was a little afraid to ring Les fearing the worst, was it going to work? She rang me two weeks ago and I couldn’t get a word in, she’s over the moon and fighting fit.
Her husbands so pleased he’s taking her to Moscow to see the Bolshoi Ballet as a treat.
I must apologise to you or anyone reading this story. I’m not saying I’m on it, Les is on it, tough on everyone else, I’m saying the possibilities are there but until medical organisations get off their high horse and stop pooh-pooing this treatment as voodoo medicine there will be a lot more ill people, Just prove me wrong?
Sorry it’s so long, believe me this is a very brief resume.
Before people say what a load of Cobras look at http://www.ncbi.nlm.nih.gov/pubmed/16817641?dopt=Abstract
I wrote this about 10 years ago; Bill Haast has since died; 106 years old
Lesley and I still take our venom 30 years now.
Unfortunately I do not know anywhere in the world that does this treatment. On saying that there is a treatment called Esperanza Neuropeptide that uses Cobra Venom. See http://www.dcscience.net/Esperanza-email-11-Nov-2009-anon.pdf but it’s very expensive; my treatment is not available anywhere in the world. The one thing to give anyone with a chronic complaint is hope.
All the luck in the world.