This is my first post. I am feeling in limbo so much right now and am feeling very anxious. Across 2020 I had a huge increase in migraines and general headaches which caused me to go to my GP several times. In June 2020, I woke up one morning and everything was spinning and I had really bad vertigo for two weeks and was sick. In July 2020, three fingers on my left hand went numb and felt different. Around the same time, my face was spasming and felt a bit numb in patches. In September 2020 both of my feet went numb and it felt like they had been dipped in snow. This then went by October. At the time I had started running and thought maybe both feel had a trapped nerve or something.
in October I decided to get a private MRI scan of my Brain as my GP would not refer me to get tests. The MRI came back that I had 4 periventricular white matter lesions and it recommended that I was referred to neurology. My GP referred me finally but non urgently and delayed the referral. Therefore I decided to go private for a initial consultation with a neurologist. He said the MRI indicated inflammation on the brain and it was likely to be a autoimmune disease- this was when MS was first mentioned. I then was slotted into the NHS after a urgent referral was put through instead. The neurologist said that he felt it looked mild and was caught early at the time, but needed further tests to be sure and determine what is wrong.
In December 2020, I was diagnosed with optic Neuritis after my vision went blurred in my left eye with some discomfort. I had some steroids and this has since cleared. I then had a lumber puncture and mri of my spine on the 16th of December. I am waiting for these results still. I have a appointment with neurology on Monday next week to find out finally what is wrong.
I am really worried that they are going to tell me nothing is wrong and I will the feel like I’ve gone crazy and feel invalidated. I know this is irrational and probably won’t be the case after what the neurologists have already said to me. I feel so run down and tired all the time. I keep having weak arms and legs and funny pains or sensations. I don’t know if I’m being hyper vigilant and imagining it. Because the first neurologist said it seemed mild also, it has made me worried that I’m almost a fraud and it’s all not real.
I wish none of this had happened in the first place and I know I am lucky for it to be mild if that is the case. However, now it has happened, I really want a diagnosis and treatment so I can move forward with my life and come out of limbo land and feel validated.
do you think I would qualify for DMD? I just want to know what they found in my spine mri and in the lumber puncture. Did anyone else have to wait 6 weeks for their results?