Ive had my MRI scan before christmas wich showed large amounts of white matter.I have seen the neuroligist who recommended a Visual evoked response or potential (VER or VEP), plus a lumbar puncture.
I had my VER test today wich had to be done a second time,due to I was having spasms and tried to control them wich made my upper body ridgid wich interfered with the test.I did manage to relax my upper body and the test went well.
I am now waiting for the lumbar puncture appoinment wich I have been told is painfull and gives you a server headache.
I now feel I am another step closer to a full diagnosis and all tests point to MS.
I have been prescribed Amitriptyline but they just do not work on the pain at all.I have a reveiw about this medication on the 30th,I am sure they will up the dose.
Although I am pritty ill and unable to do much for myself of late I am staying positive,I am getting the tests I needed,wich means a step closer to treatment.
I was chatting with a friend about her brain tumors a few days agao and she told me her 10 yearold was registered as her carer.This has shocked me as my 10 yearold is only my baby and I didnt see her as a carer.Yet she helps me to move around the home,she helps make beds,clean house etc etc.I had to come to realisation that actualy my baby was my carer and it shocked me.I feel so guilty that my baby is loosing part of her childhood due to me being so poorley.
There is no easing of my symptoms of late,Ive got stuck in the bath tub due to my legs refusing to work,the constant pain my body is in,the fatigue is so bad I can do nothing but sit or lay down.But I am fighting back.I dont give up easily,I will do as much home chores as possible,I will fight the pain and walk my child to school,Im not ready to allow this illness to take control of my mind and body.
There are big changes on the way and I have to deal with them.I have to accept these changes I have no choice.But I am not going to be dragged down.
The slurred speach,I used to take a deep breath and repeat myself,I give up,I no longer repeat myself,if you didnt here me the first time then thats not my problem.
Im still a happy person,life is for living,bad things happen its how we deal with them is what matters.