Morning everyone, so I thought I’d share this. Tuesday of this week I had a suprapubic catheter and botox done, I’ve had the botox done now for about 4yrs, anyway had the op, all went well apart from it totally flooring me and the pain and discomfort, what’s made me ANGRY is the fact that I was sent home with 3 bags, 6 dressings, I’ve got the type which is called a flip flow, so basically I don’t wear a bag in the day, but do at night and I was told on discharge that they would arrange for a district nurse to come out and change my cetheter and maybe bring more supplies in… 6 wks time no one really showed me how to work things properly, my husband who is my carer wasn’t allowed until the last minute to come to the room I was staying in, so he had no clue what to do…what the hell is happening to the NHS
That is pretty appalling, but not a surprise given the state of things in this country right now.
I don’t know whereabouts in the country you are, but you could get in contact with your own GP practice who should arrange for a district nurse to come out and explain things properly to you. You could also complain to the hospital if they have a PALS (Patient Advice Liason Service).
I hope you are able to get some information quickly. Hospitals definitely should not discharge patients without the correct information.
Thank you Willowtree for your reply, I’m in Huddersfield West Yorkshire, yes me and my hubby did say about contacting our GP, I feel slightly better today so I will, thanks again
Jean
Same happened to me 18 months ago. I never thought to ask anything, thought it must be so straightforward I would know what to do. I’m very fortunate to have a sister who’s a nurse so an urgent phone call to her sorted me. It really shouldn’t be like this
Thank you for your reply Purplebubbles, they did try to explain some of it to me, but I don’t take things in very well now and said my husband should have been allowed to be in on it, after all its him that will be doing most of it. I think its a disgrace that we have to wait 6wks for the district nurse to come, nobody should have to put up with this and I’m really sorry the same happened to you.
Oh that’s dreadful Jean, I am so sorry for you and your hubby.
He should have been allowed in the room with you while they were explaining what to do, especially as he is your carer.
You could get in touch with PALS if you feel up to it to complain, but I don’t think you should have to wait 6 weeks for the DN either.
What the hell is happening to our NHS?
Hope things are better for you soon Jean, take care.
Thank you TeddyBear1 , it is shocking treatment, this is what we and other’s are up against, thankfully my hubby has got his head around it, we had to order our own night stand and told to buy new dressings for wilko, so we like a lot of other’s will just get on with it…for now.
Jean
Thank you Pam, as always your words are so thoughtful and kind. Yes he should have been allowed, but as always to late was the cry. If our lives weren’t so bloody hard with MS I would get in touch with PALS, but quite honestly we’ve enough on, thanks again.
Jean x
A group I’m sure you’ve already met given your long term catheter needs are the specialist urology nurses. There is likely to be such a team in your local hospital as well as a community team who should be able to offer you and your husband their expertise and training which might be helpful
Thank you for your reply David, it was this exact team that treated me on Tuesday after my op and it my original post that is the help I got, so not much really.
Jean
Hi Bouds, thanks for asking, I’m doing ok, just getting used to it all, I have the bag on at night and use the tap during the day, the pain has eased off and now its just uncomfortable, but I know that will pass. Hate looking at it, don’t like this thing sticking outta my belly, but there’s nowt I can do. I tell you what is strange, I constantly feel like it need to pee, now because you have the same as me, although I know you wear the bag all the time, did you feel like this ? Hope your home now and over the flu, sending BIG HUGS,
Jean x
Hi Jean just chipping in on this one as I’ve only just had my problem which is similar to yours solved. The pain and constant feeling you need to wee could be bladder spasms. Speak to your GP for medication.
Sam x
no one really showed me how to work things properly, my husband who is my carer wasn’t allowed until the last minute to come to the room I was staying in, so he had no clue what to do…what the hell is happening to the NHS
