Advice

New diagnosis and before diagnosis
1

Hi. I am new to this site. Hoping someone can offer some advice. I was diagnosed with CIS in June this year. I had had demeliation 18 years go. My neuro sent me for a spinal scan which I had done two weeks ago. I am due to get the results in October. Since June there is not a day goes by where I feel ok. Fatigue is still a real issue for me. The only thing that has improved slightly is the vertigo. I still have numbness down my left side and when I walk it’s almost like I can feel my legs shaking. Recently I have severe pain in my spine and legs. Can anybody give me some idea when I may or may not ever get some relief? Probably impossible question to ask. But hey hoping someone can give me some hope!

2

Hello Lou Lou,

may I suggest that you pay a visit to your gp and hopefully he/she can provide you with some pain relief. I feel your pain for you and send (((((HUGS)))))

Janet

x

3

Hi Janet

i am already on Pregablim. But yes I think you are right. Think I will need to go back to go. Just feel like I’m always there at the moment!! Am supposed to be going to venice next Friday. It was a birthday gift from my husband which I should have gone in June but wasn’t able. Not sure I feel able now! Feel like it’s all to early.

Thank you for your help xx

4

I’m on Gabapentin (2400 mg) and Amitriptyline (20 mg at night) for pain relief and D3 for the brain fog. Hoping things improve for you soon.

5

Hi Theresa

i started on gabapentin but was changed to Pregablim as my body was shaking uncontrollably . Guess it’s trial and error!does the d3 help with the brain fog?

xx

6

Hi Lou lou - For me the D3 (at 1600 iU per day) really helps with the brain fog - I’ve not had any problems with it for several months now (was put on the D3 in March of this year).

7

Thank you x