Got diagnosed 5 days ago so not good news for the new year but have been put on strong steroids for 5 days and my mood and general balance and strength has improved I no ms is unpredictable but does this generally help for long periods as I am unsure about going back to work so soon as my job involves being on my feet for most of my shift dont fancy being off work for another 6 months if it is going to cause me problems again so soon any advice would help is it worth looking for another job that is better suited for ms suffers or job any ideas might help.
any help would be appreciated on this or anything else
Hello there,and Happy New Year.You’re right that it isn’t a good start to join this esteemed club,but your attitude is very good.You have your own version of MS and you are the world’s leading expert on it.Anybody who has been here for a few years can fill page after page with advice,but I reckon you have overcome one of the greatest hurdles.
You are not Egyptian…In de Nial. It is a new year and you have a new set of challenges,but you will get plenty of help on here.Your GP is the gateway to the medical proffesion, so a good relationship is vital.Don’t roll up there clutching wads of paper and ideas you’ve ‘discovered’,and if you feel the need to pay a visit be positive.
Do things which please you,but be aware that you may have to approach things differently to avoid frustration.Be positive, to keep the people around you on-side.You will find good advice on here, on how to work with work.Enjoy the 'roids and how they affect you,but don’t be surprised if you end up hoovering at 03:00 and emptying the cupboards,
When steroids work, they tend to reduce how long relapses last. It’s too early to know for sure if yours will help longer term, but it’s great that they appear to have made a difference so quickly. Fingers crossed it continues.
Steroids do not prevent new relapses - only DMDs (disease modifying drugs / treatment) have been proven do this. There are eligibility criteria to get onto a DMD, but if you have had at least two relapses in the past two years then you should certainly raise the question with your MS nurse.
As far as work goes, please do not quit your job. Take your time to make any decisions, but also see if there is anything your employer could do to make your life easier. MS is automatically covered by The Equality Act. This law states that employers have to make “reasonable adjustments” to allow disabled employees to stay in work. This might involve new equipment, a change of hours or even a change in job, if possible.
Don’t rush back to work too early. Take your time and speak to your GP and MS nurse about when’s best to return.
The steriods are great when they work! My eyes were like pin pricks apparently when I got my dx and got prescribed these.Sadly they won’t give me them again as not bad enough when I do have symptoms as they are not bad enough.lol.So depending on your dr/neuro don’t rely on them if relapse mild.
Remember crying down phone at MS nurse, felt like a junkie -just give me a drug to take away the fatigue(it was one of those feet nailed to floor,spoon felt like a tonne episodes) just for a bit lol.One of my few feel sorry for myself moments as generally I am a could be worse attitude to my MS.Probably as work in care sector and do see people much worse than myself so helps put it into perspective.
I try to take it as it comes as tbh can’t see how I can change whats going to happen.And if I look too far into whats and if’s with MS I would never do anything. I could be in a wheelchair tomorrow or be like I am right now for next 20 yrs and worrying constantly won’t give me anything but ulcers lol
Tell your work you have MS. They can’t make adjustments if you don’t tell them. Definitley don’t quit job unless you have private income because as you can read on here the benefit system is a nightmare.and pretty sure if you quit you will not be entitled to money for x amount of weeks.Your work has to dismiss you. Just make sure you know what you will get before you do anything.
I recently got diagnosed with MS on wednesday…I’m actually not as upset as I thought I’d be. Everyone around me seems to be more concerned and worried than I am
So Ive been having this numbness and tingling sensations in my legs and lower stomach for a while (years to be honest) and they found out it was MS…so I guess I have been relapsing (getting to terms with the terminology)
I am now laying in bed and my legs feel tingley and my feet feel like someone is heating them up…lol…is this normal?
I meet with my ms nurse on the 28th to discuss treatment…im a lil confused…what treatment should i be taking? Huffs
