Hello,
I finally have an appointment to see a neurologist, and have booked an eye test with an optician tomorrow so I can go armed with an up to date picture (on and off blurred vision, tiny flashing blue lights, pain and grittty itch with stinging tears), but I’ve just had more blood tests back from my GP, who says high urea/uric acid of 422 could explain pin in wrists and hands, and to tell consultant re. worsening bladder problems
How helpful is it to produce a symptoms list at the first appointment? Part of me feels ridiculous, because the list feels endless, and I figure that he’ll notice what’s wrong as he performs his examination. But, this is where I am since February last year:
numb, tingling face, mouth and lips
dead arm in bed-have to play “find the arm” as I can’t feel it
severe headaches and right eye pain
continuous stiffness/pain(muscles/joints-not sure of the difference) all over, epecially left upper back, ribs,heavy dead arms and leg pains, pins and needles
troncheal bursitis (right hip-left has now started to hurt as well)
wetting myself/unable to empty bladder properly
stumbling around-looking like a tightrope walker to avoid falling(lots of flailing arms and alarmed epressions!!!)
painful hands and wrists-dropping things constantly, can’t unscrew lids etc.
stiff right ankle with limited ability to rotate fully
no arches on same foot
feet likes blocks of ice
physio confirms abnormal romberg, and has mentioned upper motor neuron involvement, as well as wasting of hips and weakness pushing outwards with thighs
mixing up words (nonsense words) and forgetting how to swallow
getting stuck on one word/repeating it even though I’m aware I’m doing it
my walk just feels clumsy and very odd… veering off walls and, recently, having to shimmy backwards or sideways because I’ve gone too far in the wrong direction and I have to right myself, just tt leave the room!!
:0