Hi folks! I’m supposed to call the neuro’s secretary this week to tell her how I got on with my steroids (5 days of Methylprednisolone @ 500mg, three weeks ago) and I’m really not sure what to say.
I was dx’d last month but the neuro wasn’t sure what type of MS I have so gave me the steroids in case I was just going through a very long relapse (I’ve been unwell for 8 years now (4 with a dx of ME)), on the basis that if I started to improve, DMDs could be considered. The thing is, apart from feeling really unwell when I was taking them (extreme fatigue and feeling very spaced out), the only difference is that I now have ‘the buzzies’ in my right hand, which I’ve never had before and started while I was taking the steroids.
I’m tempted to say they made some improvement just so I can try them (DMDs) as how can they tell whether I just have very mild MS as opposed to progressive? Also, if it is progressive, is it a good sign that he didn’t want me to have a LP i.e. can you have a dx of PP without a LP (recent report said I had lesions (T2 FLAIR?) in right parietal lobe and left post central gyrus on first MRI and now have additional ones in left and right frontal lobes, left and right parietal lobes and ‘a single high T2 and high FLAIR signal to the right within the brainstem posteriorly’)?
Really not sure what to do…