Hiya! Just been diagnosed with MS after being unwell since 2004, dx’d with ME in 2008. My neuro isn’t sure what type yet so has prescribed steroids on the basis that if I start to feel better, it is probably RR and I can have DMDs.
First MRI (Oct '10) showed a couple of lesions, so not enough for a diagnosis. Second MRI (Apr '12) showed a few more ‘small scars’. I was happy to have a LP but was told this wouldn’t be needed.
I don’t seem to have relapses or remissions, just very debilitating fatigue with the odd new symptom appearing occasionally over the years. Sometimes they go, often they hang around. My main problems (apart from the fatigue) are muscle pain, balance & bladder issues, stiffness when walking, eye pain, difficulty swallowing when tired and cognitive issues (the worst one in my book).
I guess it’s the lack of relapses/remissions that concerns me. I know that I’m very lucky to have not experienced anywhere near the problems that some people have had and feel quite guilty to be honest. I just seem to be experiencing a very slow decline.
I really don’t know why I’m writing this but my initial reaction is to go get them steroids and feel miraculously better and get my life back, in which case, I could be setting myself up for a fall.
Anyone willing to be the voice of reason?