Hi everyone. So this is a long one and I could really do with some advice and help. So about a year ago I started to develop alot of neurological symptoms and my initial thought was to obviously see a doctor. Usual bloods done for B12, diabetes , autoimmune diseases etc. All come back clear. So I got referred to a neurologist and explained my symptoms. 24/7 minus the odd few hours, I have a burning and tingling sensation throughout my arms, hands, legs and feet. Sometimes this can feel like creepy crawlies. A severe sense of fatigue, not the usual tiredness, but fatigue So overwhelming I can barely move. My vision goes blurry , my head feels woozy, I feel drunk which comes in waves. I developed psoriasis at the same time the symptoms started aswell In multiple places. I lose balance all the time and feel clumsy. And all of these symptoms for a year now is destroying my life and making me so ill and uncomfortable all the time. Anyway, the neurologist said he doesnt think its MS and sent me for an MRI 3 weeks ago. After chasing this up today, the receptionist who couldn’t discuss medical results has basically implied that the report has been sent back to the GP and come and see us again if needed ( I believe this obviously means the mri is clear ) All the research I’ve ever done to try and pinpoint myself whats wrong has always pointed to MS or CFS. ( chronic fatigue syndrome ) after such a long wait, I feel so deflated to hear it probably isnt MS. Because I could finally get some sort of treatment..
Now , im back to square one, having to see a GP to try and find out what is wrong with me!! I feel hopeless, lost , unsure what to even look for now apart from maybe fibromyalgia.
I apologise for the long post but could somebody please share some insight or advice on what to do from here as I cant cope living with these symptoms.
Thankyou so much
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The tingly leg was why my gp sent for a MRI and lumbar puncture. Sadly that came back with plaque or scarring on the brain. So with the lumbar puncture and the MRI coming back positive for MS I was diagnosed.
I am afraid to say the only bit of advice I can give you is trust I your doctor. If you are still worried get an appointment with your GP or the neurologist who did the scans and talk to them as they should either confirm it is MS or isn’t. Then point you in the right direction.
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Thankyou for your reply. The MRI has come back all clear..
Meaning I’m back to square one after a year of these symptoms that are getting worse with no answers and doctors that have told me to wait a month for an appointment to follow up. Sorry to rant im just so lost now with no idea where to turn. I’m going to attempt to get a diagnosis of fibromyalgia as there is no other possible options as this point 
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Hi Stuart. Believe it or not - that clear MRI is excellent news. I’m genuinely pleased for you 
My first set of scans (CT &MRI) came back as a benign Glioma followed by a brain biopsy (which is no fun at all) then, everything slowed down. My symptoms of brain fog, forgetfulness, vision loss and seizures continued through the next 1 to 2 years as I was diagnosed with CIS, Tumefactive demyelination, Epilepsy and RRMS to now where I’m waiting for the date to go and discuss my last MRI and what DMT I would like. It can be a frustratingly slow process that does require patience but, you will be able to adapt (Unfortunately mate, you have no choice) you usually get a quick response from the doctors when something has gone seriously wrong so, try to bear that in mind.
The good news is that you are on their radar and, things will still be happening behind the scenes it just takes time because lots of departments and people will be involved. You could always try a private neurologist- it may not be much quicker and, probably won’t be cheap but, it’s an option.
For now, try to stay calm and take care of yourself. It’ll also be useful if you can keep a diary of symptoms for now.
All the best mate
Jon.