I’m not even sure where to begin.
I have type one diabetes, endometriosis, carpel tunnel in both hands and wrists, and gastroperisis. I’m going for a biopsy next week to test for cancer, and now I’ve gotten a diagnosis for ms. I’m just sort of in shock, really, because I really wasn’t expecting it. I thought I had a brain tumour or something.
I don’t think it’s really sunk in yet, like it hasn’t hit me. I currently have headaches, backache, memory loss, slurring of speech and mixing of words all the time and occasionally have spasms in my legs and feet, pins and needles in my feet, legs and hands and cramps as well. I have extreme fatigue all of the time, no matter how much sleep i get. What do i do now? I mean, is there anything I should be doing? I can’t even think straight. There’s no support groups in my area, and I checked. I have no friends or family and my husband is leaving so I have no support network.
Thanks for any help.
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Well it seems like your in a pretty low place at the moment slimanisarah280. I’m sorry to hear that your husband is leaving you, especially at a time when you probably need him the most. All those symptoms you describe regarding the ms I can empathise with as I have had them on and off over many years now. They come and go. Although I can’t comment on all your ailments and illnesses but I can empathise with the lack of support being in a similar situation regarding friends or family. There’s a lack of support groups where I live too. I’m talking about places where you can physically attend. I used to attend one before COVID hit but it never reopened again, unfortunately. And I do miss that group. I think it depends on where you live and I live in a fairly rural area. I have had carpel tunnel in both my hands and I did have the operation for that. In my experience I wouldn’t have it again because I have not got the strength in my hands now. I find it hard to undo bottles and jars nowadays. I’ve also had cancer. Has an operation last year to have it cut out which they deemed a success as they believe that they removed all the tumour and it hadn’t spread anywhere else. Been having regular blood tests which so far have not detected any signs of the cancer returning. My next blood test is due next month. You’ve got to take one day at a time. Try to find out as much as you can about any available treatment and medications that may help you. Being firm with drs and other health professionals. Don’t let them bully you into something if you’re not sure. Currently my ms is on an even keel in the main. I am on a course of medication for muscle tightness.. spasticity. That is improving albeit slowly..or too slow for my liking I ought to say but, you can’t rush these things as it’ll take the time that’s needed. I have trouble with speech and often can’t find the word I’m looking for and also have trouble pronouncing it when I do know the word I want. I seem to frequently have trouble swallowing now too. That’s horrible at times. I’ve had trouble with my bowels at times.. too frequent really. I don’t normally tell anyone about any of it as I find it embarrassing and really I probably shouldn’t: I’ve got MS and these things are part and parcel of the package. If other people have any problems with it then that’s their problem to sort out. Not mine. Don’t be hard on yourself: be kind to yourself. Yes, you might have to be a bit pushy at times with not just your GP but other health professionals too. Just be polite and firm with them. And rest up if you are feeling tired or fatigued. Other stuff can wait. Wishing you well and hopefully you’ll get some positive news regarding your cancer biopsy and it might not be cancer at all.
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