Ah OK, so the MS Nurse won’t be sorting my DMD’s out. Neuro reckons it will be a few months until I get an appointment at the other hospital, so I’m guessing no DMD’s until then?
I just googled the Neuro, MS is not listed as any of his ‘Specialties’, though he did say in a rather patronising way ‘I DO know A LOT about MS’. He was one of those people who says ‘Do you have any questions?’ but then carries on talking, leaving me sitting there with my mouth half open like a goldfish. I’m beginning to wonder if I was on some kind of hidden camera TV show!
He also suggested some anti-narcolepsy drugs, which I don’t feel I need at all. It feels like we were talking totally different languages. I appreciate he doesn’t know me like my GP and mental health advisor, but I do feel he could have taken a little time to try and understand what I was trying to tell him.
I do have a couple of policies that I took out in 2010 and dug them out yesterday. Having read through all the stuff I’ve never bothered reading before, it turns out I said I hadn’t experienced tingling/numbness of the lower limbs or blurry eyesight. I’d had both, 2004 and 2006, but totally forgotten. In my defence I answered these questions while driving home from work late one night (using handsfree) but thats no excuse for not checking the details when I receieved it in the post. Liverpool Victoria have been really good and said that as MS was not given as a possible diagnosis, the policy is still valid. They pay out after a month or being unable to work. Axa are going to send me some paperwork to see if the policy is invalid, not sure what they give me. I am the easiest person to sell insurance to ‘you have a mortgage, you need these add ons’ and I just say yes, without knowing what they even do!
I left the hospital feeling really positive yesterday, but that feeling has gone. But I definietly don’t feel worse than before the appointment, so thats got to be progress
Thanks again for all your advice Karen