Admitted to hospital for sudden symptoms

New diagnosis and before diagnosis
1

Hi everyone,

I am so glad I stumbled over this site. I am feeling a tad confused, upset and alone. I have just been discharged from hospital after a 3 day emergency admission. Feeling slightly better but still completely bizzare lol

Since the start of this year, I have been feeling run down, feeling like I had a bug that was never coming to anything, leaving me quite exhausted. I also started to get lots of mouth ulcers at this time too. As the year progressed, I have felt worse and worse, on and off spells of naseau, lightheadedness. I started developing pins and needles most nights lying on the settee (my favourite place lol), and restless legs. Last Friday around teatime I suddenly got painful skin on my leg, like it was sunburnt, I couldn’t even bare to put pj’s on that night. By morning it had eased off. On Saturday night, I went to out of hours, as my face, tongue and lip were tingly and felt numb and swollen. I was sent home with a “viral infection” diagnosis. Over the course of the week, my mouth got so dry I could barely speak (hubby was glad) and on Wednesday night, at 7pm, the whole left side of my body went completely numb. Went to the docs first thing in the morning, leg gave way twice on way there. By this point, the pressure in my head was unbelievable and I was weak on left side. Got admitted straight away, and was told they suspected tumor, encephalitis or menangitis. Thankfully after scans and lumber puncture these were all ruled out! Yay. They ran some other tests and said that basically the only thing that is left is neurological. Have been refered there.

The tinglyness, naseau, fatigue and lack of appetite continue. I have also developed a sore left eye. It feels like it is straining to read something?? I can open my eye, but much prefer to keep it shut for comfort. I have only lost balance twice in all of this, and speech seems fine, although have had to slow down a bit as I keep stuttering.

I am open to the fact that it is NOT m.s or indeed any neurological condition. Infact I am beginning to think I am imagining it all. Ha ha. I just wish I knew what on earth was wrong with me.

My family and hubbies family haven’t shown much support tbh. Quite hurtful and upsetting. More upsetting, last night had a big massive row with hubby, he said he doesn’t want to hear about any possible illnesses or symptoms. He is sick of it all. I didn’t realise how self obssessed I have been, feel bad.

Anyway, I am so sorry to have rambled on to such a great length, now you see why hubby is sick listening to me he he.

Looking forward to chatting to everyone, seems like a nice forum. Happy Sunday folks x

2

(((( NikNak )))) You sound like you are pretty much on the same path as me bar a few points. Luckily my hubby is sympathetic and just as eager to find out what is going on as me.

Like you say I dont WANT MS… I want a name for how I have been feeling for the last few years (and especially the last year) and then I can go ahead and FIX it.

I’ve even had to make the hard decision to sell my business as I simply don’t have the energy or reliable physical ability to carry on.

If only GP surgeries had magic boxes we could climb into and they press a button, we get a magic scan and it prints out everything wrong with us… sigh

I have my first contrast MRI on the 24th so hopefully I can then rule out MS and either certify myself as crazy or find another reason for the oddities!

Have you had a contrast MRI yet?

Yzzy x

3

oops I hit ‘post’ too early.

have you had an eye test recently? This is what sent my GP into “perhgaps this is more than oddities” as the optician saw I have Optical Neuropathy and palor. Suddenly all my other symptoms with that were significant.

4

Look, you and your OH are under a massive amount of stress at the moment. You are putting a brave face on, and feeling unsupported. He is telling himself it’s all a lot of nonsense and hoping/insisting that it will go away. In other words, you are both coping as best you can and according to your personalities and preferred ways of dealing with troubling things. No wonder you are getting short with each other! Please do not worry about that - it is perfectly normal for people under sustained stress to behave in ways that are not entirely helpful, and not entirely under their control either. I hope that you can manage a neutral chat about that and agree to cut each other a bit of slack. I always feel that this is best done over a bottle of Shiraz, but I couldn’t recommend that, obviously.

I am sorry that you are having such a worrying time. I hope that you get to the bottom of your health troubles soon.

Alison

5

Thanks so much for your replies. Went to the docs yesterday, my other side is now feeling odd. It was a locum and he said that I should be seen soon, and not to worry.

My daughter has woke me up mega early today lol, so just sitting watching cartoons. Hopefully get back to bed for a wee while.

Will pop back on once I am fully awake ha ha xxx

6

How are you doing?

7

Hey guys.

Well I woke up about a week ago and couldn’t see properly and was very dizzy. The doc came straight to the house and admitted me to hosp. They told me they wouldn’t see me at neurology until I had 2 clear lumbar punctures to rule out encephalitis/ meningitis etc. My back was still sore from the last one! lol It was torture. It came back clear. as did all the other bloods the did. They said they were to discharge me and I would be seen by neurology as an outpatient. I asked how long and they said they didn’t know.

I said so… I can’t see, I’m dizzy, can’t eat, can’t feel my feet, can’t look after my kids, can’t drive etc etc… and you think it is ok for me to go on and 18 week waiting list??? I was furious.

MRI scan booked for 29 April and Neuro apt the following week.

I got a letter from my consultant to take to Neuro. I opened it as I am far to nosey for my own good lol. Basically said that they suspected M.S

Got home at 6pm… By 10pm my 7 year old daughter was very ill. Long story short, rushed into hospital to have emergency surgery. She had a ruptured ovarian cyst and her pelvic was full of fluid. She was in agony. Finally we are home! She is to stay off school for two weeks poor wee thing.

My son is off school for the 8th week having been diagnosed with M.E a few weeks back. He has now understandably sunk in to a depression. With the pressure of him missing his exams in a few weeks, his diagnosis and obviously his mum and sister in hospital, I think it has just all been to much for him. He is only 15 and has been an amazing support over the last few weeks. I am so so proud of him.

Thankfully I have managed to get an apt with my mental health team today. I feel like am ready to crack!

Thanks for letting me offload, it is such a lonley time at the moment. x

8

Hey guys.

Well I woke up about a week ago and couldn’t see properly and was very dizzy. The doc came straight to the house and admitted me to hosp. They told me they wouldn’t see me at neurology until I had 2 clear lumbar punctures to rule out encephalitis/ meningitis etc. My back was still sore from the last one! lol It was torture. It came back clear. as did all the other bloods the did. They said they were to discharge me and I would be seen by neurology as an outpatient. I asked how long and they said they didn’t know.

I said so… I can’t see, I’m dizzy, can’t eat, can’t feel my feet, can’t look after my kids, can’t drive etc etc… and you think it is ok for me to go on and 18 week waiting list??? I was furious.

MRI scan booked for 29 April and Neuro apt the following week.

I got a letter from my consultant to take to Neuro. I opened it as I am far to nosey for my own good lol. Basically said that they suspected M.S

Got home at 6pm… By 10pm my 7 year old daughter was very ill. Long story short, rushed into hospital to have emergency surgery. She had a ruptured ovarian cyst and her pelvic was full of fluid. She was in agony. Finally we are home! She is to stay off school for two weeks poor wee thing.

My son is off school for the 8th week having been diagnosed with M.E a few weeks back. He has now understandably sunk in to a depression. With the pressure of him missing his exams in a few weeks, his diagnosis and obviously his mum and sister in hospital, I think it has just all been to much for him. He is only 15 and has been an amazing support over the last few weeks. I am so so proud of him.

Thankfully I have managed to get an apt with my mental health team today. I feel like am ready to crack!

Thanks for letting me offload, it is such a lonley time at the moment. x

9

(((Hugs))) niknaknoodle, I am not surprised you are ready to crack after the last few days. I hope things are starting to improve now and that you get some answers from your MRI and neuro appointment.

10

Hi Niknaknoodle, Sorry to hear about your families recent issues sounds like you have had a right old time of it. Glad the mri/ neuro appt has been speeded up for you. Hope things settle down for you soon, be kind to yourself, and try not to do too much, have you any friends and family who can help lift the load a little at the moment? Leah :slight_smile:

11

Goodness, your family is having a torrid time at the moment. I hope that you all reach calmer waters soon.

Alison

12

I know this will sound weird but have you all recently (like in the last 18 months) been to Europe to forests or camping etc?

You don’t think perhaps you, your daughter and your Son might actually have Lyme disease do you?

I say that because it can be miss DX as MS and ME… and… get this… a lot of females with Lyme report Ovarian Cysts!

The usual tets are

  • enzyme-linked immunosorbent assay (ELISA) test
  • Western Blot test

But the thing is they aren’t reliable… however as your daughter recently had a cyst her tests might come back positive.

try and think if when you last went away any (or all of you) had a strange bite or mosquito bump that looked like a ring…

I say Europe but people have reported getting Lyme from british ticks too.

13

ok I just read that not everyone has the rash so dont rely on that alone.

It just struck me hard that ALL three of you seem to have issues which is a coincidence… I would seriously ask for Lyme to be looked into.

14

Here… http://lymedisease.org/resources/pdf/Symptomchecklist%20burrascano.pdf

And just by chance I remembered I had a really bad bite on my foot in 2009… I am also now wondering if what I have is Lyme. If my MRI results come back negative then I will ask to be tested.