I have finally seen a MS Neurologist and I have been formally diagnosed with RRMS.
It was a bit of a shock as although the last neurologist said it might be MS, I think I’d been trying to convince myself it wasn’t. We didn’t discuss many symptoms, but he said my likely first sign was back when I was 19 (I thought it was just a funny thing that I felt a buzzing sensation when I dropped my hea to my chest, who knew?) and it had been pretty much silently ticking along until my face went numb last year.
He suggested that I start on Tecfidera or Tysabri, but I’m struggling finding much information or patient experiences on them.
He explained side effects associated with them, but surely there have to be more than that small handful? I’m a “read the full PIL” whenever I take any kind of medication/painkiller/allergy tablets kind of person so the little I can find is probably worrying me more than the side effects listed. I know everyone is different, but does anyone have any experience with either of these?
Also, My GP. What happens there? I haven’t been to my GP in over a year since I was referred for what we thought was a small lipoma pressing on a nerve (surprise!) and when I thought I was getting a water infection in June it was almost two weeks to get an appointment and I ended up cancelling the appointment because it cleared up. Do I have to tell my GP? Does the hospital? Will I still have to wait for so long for appointments? If I start one of these treatments and have a lower white cell count, then knowing me I’ll get everything going.
I’m just so confused and struggling to take things in properly. Help? Or talk and distract me?