Have just ben diagnosed with MS in March 2013 following several ‘episodes’ over the last year. Both my parents also suffered from MS. We were told at the time the odds of this happening were huge. My Dad was first diagnosed around 1976 when i was 12 and my Mum 3 years later.
Back then, treatment options were very limited if non-existent. My Dad passed away 20 years ago after suffering quite severe progressive relapsing MS. My Mum lived with the illness for 30 years before sadly passing away Xmas 2009.
At various times of my life, i was the main carer for both of my parents and witnessed many tough times and various degrees of suffering and indignity for both of them. After almost exactly 3 years ‘free’ of the ilness out of the last 36, it has come as a bit of a blow to be now diagnosed myself.
I took it really hard at first but with fantastic support from my consultant and the MS nurses i now realise it is not the desperate diagnosis it used to be in my parents day and that treatment has moved on a long way.
Have been lucky enough to be have been put straight on to Gilenya as my treatment following several relapses over the last few months and as a result of my family history. Very early days but feeling a lot more positive and not as fearfull of the future as i was a month or so ago!