Hi, I’m new to this even though i have been diagnosed with MS for 15 years. In the last 18 months or more my symptoms have got worse and I’m now on a course of oral steroids again for 5 days. I have a 2.5 year old son who is full of beans, i really struggle with the fact that i find it very hard physically. I can still walk but slowly and very off balance, i cannot run and feel like I’m a useless mother. I’m also a single mother too but have excellent support from my parents. I just wanted to know if there are people out there in a similar situation, today i broke down infront of my GPand she suggested this or counselling, so i thought I’d try this first. Thank you x
you are NOT a useless mother.
your son loves you, you are his world.
you are the one who comforts him when he is hurt.
kids need love.
you might not be able to play football with him but you give the best cuddles.
read him stories and have a good snuggle with him.
my sons are in their late twenties but when they were little i had no money.
other kids were being taken places and having foreign holidays.
but we had the most fabulous picnics!
we’d spend a rainy day in bolton library, they would spend hours choosing books and then the library building also had a museum (with dinosaur bones) and aquarium.
they had a different childhood but i like t think a happy one.
so please don’t think you’re a bad mother.
carole x
2 Likes
You are GOOD MUM and always remember that.You love your little boy and all he needs is for you to love and care for him and to do the best you can.i know how you feel because i had to bring my 2 kids up alone with the MS and its not easy at all,he loves you for you and as long as you are there for him he will be fine.
List your sons needs and then tick the ones you are able to meet.
My guess is that you are meeting almost all if not all his needs.
Doing that may identify some?? things you struggle with - then you can ask someone else - parents? - to help out.
The problem with m.s. is that whatever we do we know we could do it easier/better if we didn’t have m.s. and so it’s very easy to feel we’re failing/useless.
In the back of your mind will be the worry of what will happen if your condition worsens. If that happens all you can do is identify the things you need support with and then you must ask for that support.
Look around you there are many fully fit parents who are doing a useless job and you’re probably doing a much better job than them.!
1 Like
Thank you all so much for your lovely messages. Atm i am just so upset about it all and don’t want my son to suffer or lose out in anyway. Deep down i think i know he won’t as i have a wonderful family and friends. I just want to be able to do everything. I need to come to terms with that i will sometimes have to sit back and watch him whilst others help me. It’s so nice to know that I’m not alone, I’m glad i joined this forum. Thank you again Leo-mum x
1 Like
bless you leo-mum
one day you’ll remember feeling so upset but you will be in the position to help others on these boards.
have a nice evening and give your boy a hug from me.
carole x
Thank you Carole, thankfully he is nicely tucked up in bed for the night Leo-mum (Nasrin)