Went for my first neuro appointment and I’m still a big giant ?
The neuro was lovely and has been one for 20 years and was very thorough with me. Lots and lots of questions which was a bit off putting, but overall he didn’t want to leave me with any false hope by saying what he thought it could be. He mentioned that because I was pacing myself (which is part of the treatment of ME) he didn’t think it could be that, but to wait and see how it goes.
He did lots of reflex tests, touching of the nose and following his finger.
He’s going to do a MRI on my head and spine as the symptoms I’m having point to that part of neuropathy. That’ll be 4-6 weeks (quickest in the south for that which is quite good). I’m due to see him again in four months time.
My only question is that he said he’d wait and see to get the scans before saying anything on what it could be. My GP already said if they find nothing neurologically that she was going to give me a diagnosis of ME. Is she going to ignore that the neuro said MUS (medically unexplained symptoms) and give me a diagnosis or what?
So I’m still firmly stuck in limboland and hopefully be about 2 months before I find out anything more.
I’m off to see my GP about the appointment anyway as I’ve been diagnosed with an essential benign tremor (runs in my family so knew that was going to come up!). I think I’ll bring up my question of ME as he seems to have misinterpreted what I said about how I do develop malaise after over exerting myself.
He said it was better not to be diagnosed with something than to have a label. Now I can see where he’s coming from, but at the same time MUS isn’t going to get me anywhere with anything (benefits, working, etc).
What are some of your guys’ thoughts?