Since being diagnosed with MS a month ago I’ve had so many symptoms double vision, tingling in hands and arms, numbness from my feet to my waist all have subsided still have numbness on the last two fingers of each hand and Lhermitte’s sign as soon as I look down I get an awful buzzing down my whole body it feels like I can actually hear it. Feeling pretty down about it all though, up until a few months ago I was absolutely fine and now I feel like I’m treated like a poor soul that can’t do much for myself which is not the case. I was wondering if anyone has had a lot of symptoms like these then been okay for a while? I’m worried, waiting for another mri scan on my spine but I’m still worried about how severe this is going to be?
Hi all,
New to the group and this looks like the “introduce yourself” thread 
My first “episode” was back in 1993 where I lost all feeling, strength and co-ordination on my left hand side. Fortunately I had a good private health scheme through employers at the time and was seen pretty quickly resulting in an MRI scan. I was told at the time that it was probably a virus issue but that it could be MS. As it happened, symptoms cleared up after about 6 months and the issues were deposited in the depths of my mind and memory.
When I think back, I’ve probably had issues over the years which I’ve convinced myself were not related but, in all probability, were until a couple of years back where I started to have similar symptoms on my right hand side. I decided to break my rule of not bothering the GP unless it was something that I was really concerned about approximately 6 months ago and have been diagnosed with RRMS two weeks ago.
Currently waiting for an appointment with the local MS nurse and for a Lumbar Puncture and then back to the consultant to discuss possible treatment. In the mean time I’m using this site to “gen up” on MS and what it’s likely to bring in the years ahead.
Many thanks for the resource, seems like a good place to be to keep informed.
Good luck and all the best to those dealing with MS.
Hi all
Really don’t know if I’m on the right site here but hoping for a little advice!
6 months ago i started having extremely bad stomach problems - obviously never thought of ms but 3 months ago i woke up to tingling in my left hand and a loss of grip (annoying being left handed !) Again thought little of it just happened to mention it to gp, she sent me to physio who said i have a weakness down my entire left side and he wants me to have neurological tests asap! Slightly concerned at that point but thought little of it, last 2-3 weeks however my whole left arm feels like it doesn’t belong to me anymore can barely write my own name or text (God he!p)
Also now having a very odd sensation in my lower leg feels very weak one minute and stuff the next.
Basically my question is - is this a ‘normal’ timeline for things to happen? I naively know nothing about ms (sorry!) I thought it was a slower progression then a few weeks/months
Any advice will be gratefully received!!
Emmagaretb MS presents itself many different ways and the degree and type of symptoms vary from person to person. That said there are none of your symptoms that are amongst common symptoms across the majority of MS patient; e.g. double vision, fatigue, etc. Loss of power on your left side might point to a mini stroke. I am not however a medical expert and I assume you will need a battery of tests including nerve conduction tests and MRIs to try and get a firm diagnosis of your situation. Good luck with that.
Hello. I am very new to this site and currently dealing with my brain rumbling round wondering if my symptoms are MS. I have only told my daughter who usually says Mum you’re fine but on this occasion didn’t. My main symptom is the feeling of something crawling on my right wrist so many times a day and sometimes I feel like I have something trickling down my hea above my left ear. I suffer from vertigo particularly in lifts, I don’t know where I am when I go up more than one floor. Last Sunday I had a very bad episode of dizziness and was spinning round drunk like for about 2 hours. I also have tingling in my fingers rather a lot. I occasionally have speech issues but I very much put that down to anxiety - I do have lots of stress in my life! It would be great to say hello and see If anyone has any advice or comfort. I am seeing a neurologist on Wednesday - referred by my GP but referred with him thinking I have had a TIA. I don’t think I have. Thank you so much. Sarah Aged 46
Hi, I’m newly diagnosed. 5 weeks ago, I woke with slurred speech, sounded like I was drunk. This has happened a few times in the past couple years but usually cleared up within hours, this time I had it from friday and it didnt improve by monday. I called my gp and was told to go to A&E. They gave me CT scan and admitted me thinking id had a stroke. Later that afternoon, another dr insisted I had an mri as he didn’t believe it was a stroke. I was diagnosed with RRMS. I needed no further tests as they said they had enough evidence to be absolutely certain. Im waiting to see an ms specialist, I had an appointment but it was pushed back 4 weeks. I haveknow no answers to my questions which is frustrating. I believe my symptoms started around 3 years ago after I had numbness and tingling in my arms.
Sarah-bie, how did your appointment go on Wednesday? Hope all ok.
Hello, I am new to this forum. After typical MS symptoms in 2013 they found lesions after my MRI. When the doctor said MS he also said I needed to have a spinal tap. I left the office and never went back. This past Dec I went to a new neuro and he suggested a spinal tap, I left again. Then I had symptoms for 2 months. Even though the symptoms are now all gone I am scheduling to see another new Neuro and I am pretty sure he will also ask for a spinal tap so I need to really consider it. Can someone be super honest about the spinal tap and the pain of having it and do I really need to have it if my next MRI shows new lesions? Thanks, Lane
Following- I get mine on Monday so would quite like a heads up too lol
Am no expert in MS diagnoses but assumed modern MRIs were suffice and that is all I had to confirm RRMS. The spinal tap may allow an affirmative duafnosis but then again some declare it can be erroneous as well. Good luck and hope u get peice of mind
New to MS. Hi very upset at the moment.i am a 37yrold female up until mid May working full time in a very physically demanding job.Very active had back pain on and off that wasn’t going so went for an MRI.Mri showed a disc bulge shortly after that started getting funny sensations in my right foot then left foot.Few weeks later these sensations were there all the time.Spent a fortune on Ortho consultants all agreed the prolapsed disc couldn’t be doing this to my feet.Signed off work and scared then my legs started burning after any bit of activity then hands burning and electric sensations not able to do anything physical.Went to wash my hair and got a massive electric shock in back of head and down arms.Begged Dr to refer me to Neuro and saw her this week.Strongly feels it’s MS am awaiting MRI in 11days time.Have since noticed right hand getting weak.Feeling very scared that something else will be bad in 11days time.Wondering how fast does MS progress live alone and afraid I will end up in the floor no family close by. Any advice really welcomed .
Hi All
Just joined this forum, looking for some research. Im not diagnosed YET, but I was taken into A&E on Saturday morning just after 8am with a suspected mini stroke. The 4 days before I have been getting, pins and needles and numbness all over. My lips nose and chin, strangely enough, were numb and the same. My lips went blue, but went back to normal before the ambulance arrived.
The guys assured me they didn’t think it was a stroke, but due to the symptoms, they took me in for further testing.
After some pain killers, the symptoms had nearly all gone, just my left arm that did not want to correspond. I have problems with powdery tablets so was given some liquid ibuprofen, OMG never going anywhere near that again, so had a bad reaction to that, so they kept me in overnight.
They let me home just before lunch on Sunday.
I looked on my medial notes from my gp surgery online, which said ‘Altered Sensation on Skin’
As you do I put that in Google, and ended up on this site. I will be seeing my own gp next week to discuss further and to see whether he had received the full report from my consultant, as I’ve no letter yet.
Also having trouble swallowing due to some dis-coordination with the muscles in my throat, am being tested to see what is causing this. I do wonder, if it is indeed MS. After reading some of the posts on here.
I am a 54 year old (next week) lady and live alone in the UK .
Hi I don’t know the answer but I’m new to this too- my numbness is going on 2 weeks now and cane on gradual. I get the impression that’s what it seems to do when reading these threads. Hopefully someone else can help you better, It’s a bit scary but in my head I sort of rationalise that I should get answers eventually but it’s different for me as I’m stuck in hospital with it. Big hugs xx
My very first symptoms were tingling in feet and hands This is also a sign of b12 deficiency, especially if the tingling occurs on bilaterally, on both sides of the body. Liquid b12 was the answer to my malady.
Hi Crepuscularus
Thank you for your reply I have B12 Jabs every 3 months, as I have Pernicious Aneamia ( can’t spell today 
hehe)
I particularly hate the tingling it gets well on my nerves. Never heard of Liquid B12, seeing my GP on Thursday so will ask and see what he thinks, unless that’s what’s in the injections?? One never knows lol
Hi, my name is Emma. I don’t have MS but I would like to tell you a story about someone who has.
My daughter has had MS for 12 years. She was diagnosed, when, while on a plane she lost her sight. The plane diverted and she was hospitalised. After pursuing other illnesses, she was diagnosed by a brain scan that showed 17 lesions on her brain. Of course, she had some weird symptoms before this time, legs twitching and weakness in the legs, which she chose to ignore. So she had had MS for some time before diagnosis. She was immediately put on medication.
I am telling you this story, hoping it will bring you hope.
Just to let you know how sick my daughter is, she has a blood clotting disease and has had two strokes. Since being diagnosed she has developed diabetes. She has also become allergic to things she was never allergic before. She has been in antiphylatic shock three times. At times she relapses, has twitchy legs and heavy weak legs, which are treated with Prednisone. She has been in a wheel chair two times.
When diagnosed she decided to be proactive.
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She got a chip thing with all her medical history on it. All a doctor has to do is stick it in the computer to get all her information. She has it with her 24/7.
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She learned everything about MS. She goes to all the MS meetings to learn anything new about the disease.
3… She joined the Y and swims and exercises on the equipment at least five times a week.
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She changed her diet to all healthy food.
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She treats herself good. She travels abroad frequently without fear with her little chip. She has lots of friends and goes to movies, luncheons, etc. She stays busy and never stays home and broods.
When she relapses she can’t do as much exercise but boots it back up as soon as possible.
In other words, she lives a very happy and fulfilled life.
The doctor believes her exercise and meds are what have kept her from getting anymore lesions.
I hope this helps you look at your disease and believe you can proactively help your doctor control your disease.
God bless you all and good luck.
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Hi
I find posts like this so interesting and learning about what other people went through! With me, my first obvious symptom was Optic Neuritis when I was 17. At first I thought nothing of it as it was only slight so I got an opticians appointment who recommended I buy glass, in which I did. A few days later I would wake up and couldn’t see a thing out of one eye. I had never even heard of MS at this point, especially being so young, so again I go back to the opticians. That’s when they sent me straight to A&E and they send me straight to the emergency eye hospital. I was admitted to hospital for a steroid drip and it worked perfectly and my vision came back 100% after a couple of days. I had extreme anxiety at the time so what I did was I went back to the hospital every day for 3 days to have a new cannula inserted as I just couldn’t stay overnight. Optic Neuritis did reappear a few times after this in alternate eyes. I started on Rebif medication but I am now on Gilenya as I was having relapses fairly often (according to my MRI as I didn’t physically feel some of them). I have experienced tingling and numbness but they weren’t “that” bad for me (fortunately!).
Big hugs!
Hayley
Hello everyone, my symptoms began on 6/9/18 and have gotten worse every week it seems. I first had tingling and weakness in my arms, next the same symptoms in my legs, next total body pins and needles, a couple of weeks after that I got the tingling burning MS hug, next left and right eye pain (left eye worse), next electric shocks while sleeping from head to elbows, next neck and upper back pain and stiffness along with shoulders, next complete left side numbness and tingling, next burning mouth, neck, ears and face, next ice cold feet that sometimes feel like they are burning, and two days ago had a dead arm for at least 5min.
I had an MRI and it came back clear my doctor said do not worry I do not think you have MS, well I think he’s wrong because I’m now having head zaps or brain fogs. I’m scared to death of this disease and I must be honest I have thought about suicide because I feel so overwhelmed with all of this physical degeneration I feel like I’m dying daily and I only have hours to live, I’m sure by the weekend I’ll be in a wheelchair.
I’m going to the opthomologist tomorrow to find out what I already know (optic nueritis), I think she’s going to say I’ll lose my sight forever so now I won’t be so surprised, I’m so depressed, anxious, scared, sad, nervous and I feel hopeless but I just keep praying to the LORD to give me strength, faith, and courage to not give up but I must say this disease is the most horrible thing I have ever felt in my body and I hate it with everything in me.
I’m encouraged by so many positive MS stories, so I’m going to get up, start exercising, eating right and try to think positive so I can start living again because all I have been doing is sitting around waiting to die because it just seems easier than this living hell.
Looking back I suppose my first symptom was loss of sense of smell. I just thought it was odd but nothing to worry about. Next came the foot pain and pins and needles, then numb and burning in right thigh. What took me to see the doc was an attack of vertigo. Since then the walking has become a problem and a few other symptoms besides. Still not diagnosed after 2 years of tests. Anybody else lose their sense of smell?
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