I have had short bouts of dizziness, brain fog, profound fatigue and headaches regularly for about three years, but didn’t know what was causing them.
But from September I have been consistently ill with new symptoms on top of the dizziness etc. These are muscle weakness, tremors, strange sensations like someone walking over my grave, burning, and tingling. My body constantly feels overworked - like I’ve done too much in the gym - and I fluctuate between muscles which feel like lead or like jelly.
I got referred to a neurologist in November and have my first appointment on 28th January.
In the meantime I have felt like my symptoms just keep worsening. I haven’t experienced any more new ones since the start of this period, but the existing ones seem to just get worse and worse. The muscle weakness was so bad last night that for the first time I wondered if my legs would even hold my weight.
It’s so hard to live with this without having anyone managing your care and working with you on your symptoms. To feel ill for so long with no diagnosis and therefore no treatment or plan to manage life around it is tough.
I am confused at the moment about if this is ms is it normal to have a relapse for this long and for the symptoms to feel like they are gradually getting worse and worse? I generally read information about relapses coming and going more quickly. Can anyone share any experiences that relate to mine?