It’s 15 years since I was diagnosed. I was 49 years old and it was a complete shock, although with hindsight I’d had symptoms for years. I’ve deteriorated steadily, but I’m lucky, I feel well and I’m not in pain. When I was newly diagnosed and fearing the future, terrified as to what it might hold, I was given some advice, which helped a lot. I thought I’d share it.
- Try not to worry too much about what might happen - it might not.
- Don’t put your life on hold.
It helped me, maybe it’ll help some of you too.