Hello. I posted on here some 6 months ago about the neurological symptoms I was having. Primarily one sided pain and sensory symptoms on left side as well is tremors in legs when waking downstairs, involuntary movements and twitching. I initially had an mri in aug 2016 of brain and spine and it was clear. I also had nerve conduction tests and an EMG which didn’t show anything other then carpal tunnel syndrome. My nhs neuro said it’s not ms because of mri result, although it’s not impossible to have clear mri initially he told me it was unlikely.
Symptoms never went away and by summer last year I was feeling pretty low. I booked myself an appointment with an ms specialist from the National Hospital for Neurology in London. He said my symptoms should be reinvestigated and fortunately my gp agreed (she has always been certain that my problem is MS) and referred me to him on nhs. A few months later I went in to have all the tests , mri of brain and spine with and without contrast. I also had a lumbar puncture and a visual evoked potential test. 2 months later I went back in for results. I was told all the tests were negative. There is no evidence of any inflammation in your Central nervous system were the exact words. Despite this I cannot shake off the feeling that it still might be. Stupid, self indulgent, irrational…yeah maybe but it doesn’t stop me feeling it. Having looked at historical threads i can see that others have been in my position and I wonder what happened with them. The specialist told me that people with ms don’t have clear lumbar punctures yet all the literature says that’s not always the case.
Ive just read all the above back to me and I actually want to tell myself to f**k off but it doesn’t stop me from being so full of doubt.