I have been bobbing along as we do, when I was first diagnosed I was getting treatment in the form of infusion & a day in hospital once a month. Not feeling any benefit i asked for a 2nd opinion. I went to Newcastle, I was told it wasn’t working because he said I had MS for over 10 years. I was told nothing is available to help me, I just had to wait & see how it progressed. Wow when I read on here all the comments suggest I should have some help??? Is it the post code lottery? The first neurologist i seen has retired now (dr *******) i think he was called. Now I have to travel a 70mile round trip for my privileged once a year visit, to be told there is nothing we can do. Are we progressing is there a cure where should I move too. Not often I’m deflated but some days are harder than others. I was told with my attitude I would keep going. When you dont know who is telling the truth it’s like a political minefield. 
I am in a similar situation to you.
I received a Dx of PPMS just over four years ago. No treatment in regards to DMTs, only symptomatic relief.
I receive an annual MRI of both head and spine and also a yearly meeting with my MS nurse and telephone consultation with my neurologist.
Unfortunately, there is nothing more to be done in our situation, it isn’t a postcode lottery, it’s just a fact. With PPMS we will only ever be offered Ocrevus if we display new lesions and only if we display new lesions.
Everything else is symptomatic relief and that’s a whole different ballcourt.
Wow its not great is it we keep hearing how they are working on a help I wondered about the postcode lottery as I live on the border of Scotland. I think I was looking for something to blame. I have better days when I tell myself to move on. It usually works. Thanks for the reminder.
Hi @mazmiller111 In my area of Yorkshire it’s the same, I’m SPMS, full time wheelchair user, had it for 20yrs, told I’d had it for roughly 10yrs before diagnoses, so no DMT’s, nothing, the only thing I take for the MS is Baclofen for spasms and stiffness, nothing for my pain, nothing for the high fatigue, just get on with it 
life hey.
Take care and good luck,
Jean
You take care so many of us trying different ways to cope. At least on we know how we feel. Xxx