I was dx with RRMS just over a year ago, but looking back I realise I have had it for about 8 - 10 years. There has been a steady decline with all my symptoms worsening and new ones appearing. Among other things, I have limited mobility, my right foot and ankle turn in and feel set in stone - I haven’t been able to move the toes on that foot since last summer. I have on and off blurred vision and my eyes don’t always move together, I have constant pins and needles, tingling and numbness in my right hand and arm. I have burnt the back of that hand on several occasions but have no sensation. I am very unsteady, wobbly and lose balance, I walk with an elbow crutch and use a mobility scooter for distances. I have bladder and bowels urgency.
Just before Christmas I started feeling very, very tired and really, dreadfully depressed. I was in a really dark place, both mentally and physically, and thought I might be having a relapse. I work part-time and from mid January I was signed off work for 8 weeks and returned (at my request) mid March on a phased return. I am even more tired now, really struggling with writing and using the computer and mouse, as well as driving.
I saw my Neuro on 27 March and he said I may be in secondary progression and he asked me if I had thought about when I wanted to finsh working. How do you make that decision?? I am struggling to work, but I don’t want to keep having time off sick. I have an appointment with Occupational Health tomorrow and really don’t know what to do. I think I may have to think about finishing work through ill health, so any advice would be helpful.