I’m as yet undiagnosed but due to the numbness in my feet and legs and also my very poor balance, I’ve started to use a stick. Now I’m over the intial horror myself, what I am getting fed up with is people asking what I’ve done.
I have been shrugging it off by saying I’ve got neurological problems but am not comfortable with that.
Any ideas?? I need (what a ridiculous thing to say) a further lesion before they’ll diagnose MS so wondered if anyone can suggest a suitable repsonse.
Thanks in anticipation - or is that answers on a postcard please…
Hi pink lady First off Karen your reply made me chuckle!! I wish I had used some of those reasons , brilliant !! I too have to use a stick because of my balance and dizziness , my neuro says it vertigo caused by the lesions on my brain. So I just tell people I have vertigo . The people closest to me know it’s a symptom of my MS but anyone else who asks thats my reason. Hope this helps . Sarah x
Karen thank you so much for your ideas. You have cheered me up so much. I’ve decided that I shall use a combination of all of them… Once I’ve stopped laughing that is… Thanks everyone Helen XxX
Those replies really did make me LOL Karen thank you, think I might try a few.
I too keep getting the what have you done to your leg,back etc when they see me with the crutch and i’ve just been telling people i have balance problems and it usually shuts them up.
Hi As I had poor balance and dizzy ness per DX as well as poor memory too was stating that I cannot remember what the doc had told me but it affected my balance and if I was having an off day was to say I had a problem with my balance but it stopped when I fell over
Ha ha, love them all. I have a great group of friends and i told them all at the same time at a bbq so if they had any questions they could ask me. Now I just get how are you feeling, any news, (which can be equally as annoying).
Now for those people I have not told, (normally because I have no interest in them or want them knowing about my life)
I put it simple.
Why you limping, " STD, tell your sister to get checked, I caught it from her" (normally I have to be drunk and really not like them.)
what up with you, " docs dont know" why not, “dont know, " thats weird, " yeah”
or the other way, How you doing, “not good, Somedays I cant walk, somedays I fall over, somedays I cant get out of bed, somedays I dont think i can go on, I struggle to go to the toilet, I struggle to get to work, I have had loads of tests, still dont know. I bet your glad you moaned last night on facebook how you stubbed your toe”
I like the creativity, “last night i was abducted by aliens, this leg is no longer mine, they control it, if you listen closely it even talks”
Hi, I`ve been trying to deal with this question a long time.
Just yesterday I was aksed Whats wrong with you? his was by a friends daughter. So my friend and i looked at each other, gave a wry smile and said Well, oh its MS` it seemed to satsify the enquirer.
How I answer the question depends on who is asking, where we are at the time, is there time to go into a full explanation. I dont think it is fair to pin someone down and go though the whole saga of a story (in my case, but maybe not yours). They may well avoid me in future. Sometimes I just say, my legs don`t work.
So I guess you could just say what you did say…it`s a neurological problem.
I really like Tom C`s rendition of alien abduction…not tried that one yet!