But don’t you know Tina - those brain lesions are soooo easy to fake!! I think next year they will be all the rage and everyone will want one.
(sorry has my sarcasm slipped out - hehe).
JBK x
JBK: Exactly my mother’s reply: “Why? Have YOU got brain lesions, then?” She shut up after that! I wish, in a way, my mother had not told me, because I wasn’t there and would never have known, and it just means I harbour resentment against my bro’s gf, without even really knowing her. I just wonder what kind of person, on hearing their partner’s sister got diagnosed with a serious illness, thinks: “Oh, any whinger can get diagnosed with that!” It’s hard for me to think well of her, after that. I don’t think my brother was too impressed either, as he knows I’ve never moaned, and also that MS isn’t a diagnosis you can get by whining a lot! It would be charitable to blame ignorance, but even that doesn’t stick very well, as she’s quite a clever, educated girl. I don’t know what would possess someone to think an MS diagnosis in their partner’s family was caused by “Whining a lot”. Tina x
that is so funny the brain lesion thing!
I think we should all go round wearing t-shirts with our brain scan images on just to prove our illness to these people.
It should say “Look here you, this is what is going on inside.Please don’t judge me by how i look on the outside”
When a colleague at work found out that I had MS he replied that he didn’t like working with “ill people” cos his sister had died !!!
I had only told my manager, in confidence, because I wasn’t sure that I could have the Flu jab
Then my manager called a meeting to “discuss” my “issue” with other members of the department.
Needless to say, I was so angry, that I left immediately !
So these new injections are going to make you better then?
Sick of trying to explain that one…
I have just bought an automatic used car at a dealers. I kept telling the salesman that i didn’t need to pay for the road tax as i get this free, Eventually he got it and then came out with “that’s a good perk, isn’t it?” I was so shocked that i was dumbstruck.
Lisa x
Morning
Have you seen that new drug it cures MS.
Its usually one for R&R MS.
Ronin
How about this from my neighbour who claims to have the full medical encyclopaedia of illnesses, except hypochondria, she is sure she doesn’t have that! It’s alright for you, at least you only have one thing wrong with you!"
Love it! Of course, MS only affects one bit of us .
I do sometimes wish I could give it away to some of these people just for a day or so, then they might have a bit of understanding.
My ex-boss told me in her fake really nice voice (think Disney princess) “I really envy you, having a little nap every afternoon. I often wish I could have a little sleep after work every day but I simply don’t have the time!” To this day, I don’t know how I did not hit her!!
Tracey xx
‘Oh I’d love an excuse to get a lie in’ would you like this instead of me? Awesome cheers,
‘My brothers auntys god left elbows second cousins sister in law has ms and was cured by eating hay’ ok thats an exaggeration but you get the picture.
‘How can you have that, you’re so young’
‘Would it be wise to have more children’
‘You dont LOOK ill’
I’ve only been diagnosed a month ago!!
The thread about lumbar puncture has just reminded me of another one …
My lp gave me an excruciating 4-day headache.
My work colleague said “Oh, couldn’t you just take some paracetomol?” … aaggrrr! I don’t think paracetomol helps when you’ve just had spinal fluid physically removed!
Hello,
Talking about having to inject daily got the response “I couldn’t do that, i don’t like needles”.
Implying i must love them Grrrr
Darren
Snowflake, I’m with you on the grrs for the suggestion to try paracetamol for the post-lumbar puncture headache. I did try one dose, didn’t make any difference so I didn’t bother taking any more. I guess it’s one of those things that people just can’t understand unless they’ve experienced it - and I wouldn’t wish that headache on my worst enemy!
I once told a collegue at work why I couldn’t raise my hand properly and she said, cue patronising smile you’re so brave. It’s such a shame. How long have you got left? !!!
And this was someone who did lots of fundraising for the society and should have known a lot better than to think I’d been dxd wth something terminal! GRRRRRR
I was 24 at the time btw, hence, the what a shame comment.
“MS ?? Whats that??”
This is the worst comment I’ve heard said to me.
‘Oh but you look so well… you’ve got some colour in your cheeks!’
(it’s because I’m trying to hold my temper in!!!)
Susiex
Found out an ex of mine has MS but only told a few people (not me). When i told a mutual friend (fom the church youth group we all used to go to)that i had MS he asked “could it have been something we did? As you did have a thing didnt you when you were younger?”
No it is not an STD! and you cant catcjh it off me either!!
Hehe I’ve got a few more to add to my previous post. My dad telling me it was good because he thought it was mercury poisoning from my fillings, then he asked if I still had “relapsing and recurring” MS because now it’s possibly highly active, he also told me that it wasn’t ok that I have to inject myself everyday - currently on copaxone. I also got tolf by someone before I got diagnosed that drinking too much diet drinks can cause MS symptoms, she drank about 4 times as much as me per day! Someitmes you’ve just got to look back and laugh!
I had a distant cousin ask me ‘are you sure you have MS you look well, we all thought you would be disabled, keep it up mem’
To be fair we were at a family wedding and she was half cut but alcohol is the tongues lubricant and really lets out what nieve and ignorant things these twunts think.
I really pitty people like that and am ashamed I share the same DNA.
It’s not exactly a complaint, because I didn’t take offence, but I recently met up with a friend I hadn’t seen in a while, who knows I have MS.
On seeing me striding purposefully up to him, he said: “Oh, I was a bit worried what to expect!” I’d never thought to reassure him: “Don’t worry, you won’t be having to push!”
I also think we forget that friends who don’t know much about MS might be quite nervous about things that could happen while we’re with them. They don’t necessarily know that someone with MS isn’t very likely to have a sudden medical emergency, because they don’t know what form the “attacks” take. I think some envisage it as being more like a heart attack, and having to dial 999. I try to think to reassure people now, otherwise they could be spending the whole time worrying I’m some kind of ticking bomb, and we could be spending the afternoon at A&E. It can’t be very relaxing if you know your friend is “seriously” ill, but don’t understand what that does, exactly.
Tina
x