Whether you’re in Limboland like me or coming to terms with a diagnosis, what helps you cope with everything? I love to share things that I find helpful in my own experience and it occured to me that it might make a good thread. - Talking about it - to certain friends and family, people chosen thoughtfully. I don’t go blabbing about this to anyone but I’ve found some lovely people in my life who make an effort to understand. - Choosing to think and feel positively whilst allowing myself to recognise the opposite, rather than push the uncomfortable away. Ok, it’s a work in progress. - I’m reading a book called ‘The Power of Acceptance’ by Annemarie Postma which is exactly what I need right now. The uncertainty of limboland is hard to deal with and it is all to easy to focus on wanting a diagnosis, but I realise that it can distract you from paying attention to the present. What helps you?
I have a small group of very close family and friends
basicly I’m a positive person, which is helpful
I’m also on a very interesting spiritual journey…personal to me. Watching and listening to inspiring people, inspires me.
My belief in God.
Personal development books that I read.
Walking by the ocean or being in the countryside gives me a lot of joy.
Listening to music.
The great advice you guys give on this forum…and the laughs
Just the excitement of wondering what the next adventure will be…I’ve had quite a few already
Mmmm? Intersting post and reply from Blossom.
I`ve been in and out of limbo for many years and am still half there now.
My hubby has helped me stay calm and positive. But as many of you tell me, my upbeat way has helped me and you too.
I could`ve gone doolally, with the way neuros have tossed me this way and that, but once again, it is my hubby who keeps me rational.
It can be really tough to keep your pecker up sometimes and this forum is a great place to share your worries.
luv Pollx
I’ve just been diagnosed with RRMS but thinking I’ll be ok. I’m hoping once this relapse subsides, things will go relatively back to normal. All the worry of what these strange sensations might be has gone because I know what it is. Chatting on here has helped, plus my family and friends. It’s not the end of the world, just a slight change in direction to that planned I’m just going to ride it out and hope for the best
Talking to someone privately, who’s read this link and remarked on what I said about walking by the ocean and how they too miss walking at the moment.
Can I just say, that I actually live in bonny Bridlington…the beach is five minutes from my doorstep. I can’t even walk on the beach anymore…I’d end up in the fracture clinic
When the nice weather comes, me, my husband and our dog will walk on the prom. I’ll sit on a bench and my husband will excercise our dog on the beach. I get a lot of pleasure from looking out to sea and watching the waves. I also like people watching.
I’m just trying to do the same things that make me happy but in a different way
I found out 8 weeks ago that I might have rrms but there not 100 perent about it all, but there putting me on some injections because they think it is, just had lp and got to wait another 4 weeks for results, don’t know weather I’m coming or going, so I started baking to take my mind off of over thinking things, so within 8 weeks I went from not being able to bake fairy cakes to now being able to make top class birthday cakes, people think I brought them from a shop, so im happy and content in that respect, I don’t think about ms or anything when I bake and it has helped me cope with the whole thing, and my children love helping me bake which makes me happy to.
Lovely replies! I like to make things (when I have the energy!) and run an online shop from home. I can do things in my own time. Following my creative streak gives me a lot of joy and even gives me energy. Talking to friends helps so much. My MRI recently came back ‘within normal limits’ and though I’ve not formally been given a diagnosis, I was led to believe that it may be FND (functional neurological disorder). Basically, physical symptoms they cannot find proof of cause for. I need this forum (and one or two others!) as well as a few good friends around me to talk this through with. Playing Lego with my daughter is very therapeutic too 
Hi my name is sharon & im new to all this. I was diagnosised in december 2013 after 3 years of been prodded & poked by docotors & nurses. For me its about adapting to a new way of life which has had its ups & downs. More downs than ups. I can deal with going to work so tired that i dont know my left from my right & having to continue like everyone else & the constant pains that i get in my legs & feet & sometimes finding it hard to lift my arms up to wash my hair or just feel normal. What i cant cope with is not been able to run anymore it sucks. If anyone has any ideas how to get past this, it would be greatly appriecated
Talking always helps - was only family & friends before, but now here, online. 
I trust God with my life’s direction so keep my mind open to His Word - that all things will work together for good. Whether you believe in God or nothing at all, it’s important to take the positives from every situation… Example, I can’t walk very well now, but just 7 months ago I climbed a mountain. I can’t do that now, but my hope is I will be able to again in the future. And I try and encourage my family and friends to get out there and use their bodies to live life to the full, as they never know when one day it can all change… Hope is such a powerful thing to have in the face of apparent ‘helplessness.’ Although I am not saying it’s easy, it can be very hard. But I make it a conscious choice to work on what I am still able to do, and I make plans for what I will be able to do, once/if these symptoms go into remission. Blossom had an excellent example there, she enjoys the beach so sits and watches the waves & people-watches… I love walking in the mountains and out doors - right now it seems almost impossible, but I have a plan in the future to take a fold up seat in a bergen, and every time I need to stop for a seat… Stop. Maybe not on mountains, but can do in country walks. Even if I am no longer able to walk one day, I’d hope I can still visit these places & see these sights from a wheel chair, as long as someone would assist me! Hopefully I will be getting married in the next few years… My hope is to dance. Sorry for the long reply, just wanted to put my thoughts out there. Jacelyn x
Hello Sharon and welcome. You’ve come to the right place for support…there are lots of great people on here happy to help.
I don’t work myself but I know there is help you can get in the work place. If you ask the question on the everyday living link, there are people on there who will advise you. Just click on start a new thread and your away
What type of ms have you been diagnosed with, if you don’t mind me asking Sharon?
What about asking your gp to refer you to OT and physio, see if they can give you some help and advice.
Take care
You really moved me with your thoughts Jacelyn. I know in my heart that anything is possible & up until a few years ago anything was. Your thoughts are with me.
Thank you, Blossom for your advise. I will definitely use it.
I have Rapid Relapse MS & i’m taking avonex at the mo. I have painful nerve sensations in my right leg & arm most of the time & some times in my left arm & leg & lower back. I get terrible cramping in my feet but not always. I have visual problems ie: floaters, double or blurred vision & sometimes my eye balls hurt. I have fatigue most days of the week & have had really bad anxtiey attacks in the past. Sometimes i get dizzy, like im’ off balance ( thats a fun one lol) except for brusies. i sometimes suffer from weakness in my hands & i have trouble sometimes concentrating. I sound like a wreck & my husband would probably agree as he sees me from a different view but i try to take each day as it comes.
Thanks again
I’ve found something new to help me relax Cake decorating!!. Something I can do without tiring me and maybe a future career path?!?.. Got to think about the future in case I can’t keep my ideal job Positive times now
Some really interesting replys and a difficult question a reply ive typed re-typed & typed again
i hope it makes sense what im trying to say a huge hats off to you all, me well im guessing it will make me
a stronger person ive spent all my life helping folks but what makes me cope is i may have changed
and the doors i wanted to open never will now but new doors will and i will adapt and overcome and
become a new me , im lucky 14yrs in and im still riding my harley when & if the time comes i will trike it
i volunteer for a bikers charity & its folks in there & you folks here that are so positive that make me realize
that we all are unique & different but its the volunteering that makes me cope knowing im trying to help
someone somewhere gives me goals & a reason to cope as best that i can , and my family & wife
are so supportive , its a struggle as i have PTSD as well but reading comments from you folks & everyone
else on this forum help keep folks focused & strong & i ty for that
regards sheep
This is a very positive thread - it’s great! Re-reading the above posts now (had a mixed week since I was told a week ago my legs may never get better by ms nurse) it had shed even new light on my personal journey. The point made previously that struck me this week was that when people are diagnosed, they change. And they do. Whether it’s for better or worse is a choice each individual has to make - let me explain… My ms has forced me to really take stock of my life. What direction is it going? Am I following my hearts desires?: career path (I’m 25 and want to work again - never again will I take a job for the sake of having a job, I am going to find a line of work I would actually enjoy!), friendships and relationships, hobbies - need to find a positive output for negative feelings which may crop up. NEW FRIENDS: seeking out newly diagnosed groups/ms specific centres, to meet people who really, actually, understand my struggles. This does not take away from my life long friends, but the point is… MS signals the beginning of a new journey, not the end of life. I believe without hope and a decision to grasp a positive frame of mind, the struggle would be unbearable. I am sure a lot of people can relate to this struggle. And there are days where the way forward just cannot be visualised. But keep going forward, and it will come. Even now, only diagnosed a week and not started on treatment, I want to get involved raising MS awareness. Actually after all the stress my work has forced upon me, I’d love to take up a role in a union specialising in the Equality Act!