Hi everyone, this is my first post on the new site, so hope i get it right…!!
Just sitting here having a rent to myself after my Neuo Appt earlier this week and wondered exactly what is considered as a Relapse - both in terms of what Ms’ers class a relapse as and i guess what Neuro’s class as a relapse ??
Sorry if that sounds like an odd question but i seem to be stuggelling to get any sort of help and im beginning to wonder if perhaps I just dont explain myself very well in appts with Gp’s / Neuros. Ie - I had a long list of Symptoms / Questions listed out for my Yearly review on Tues and yet 20 mins later I was out the door and i’d only mentioned 2 things…
I don’t actually want to take the DMD’s at this stage but I find it so bl*dy annoying that all im ever told is “well see what happens” - so this time I really pushed the point that I was concerned that my last MRI _a yr ago) showed new lesions and yet 9yrs since dx ive still not been offered a thing. I was told I still don’t qualify for DMD’s etc and I didnt get refered for another MRI…???
Its confusing as in the past when ive had Optic Neuritis and had steroid treatments - it’s obviously classed as a replapse but if I have a few weeks where im wiped out / have burning patches / weak arm etc etc - i dont go to GP as I just get onwith and hope it disappears but then if i dont get to mention these thngs in appts they always think im fine and only have me down as having 2 relapses in 9 yrs - both times of which i went in for steroids…
So my question is 1) so i know if its me not explaining hings very well and 2) i guess so I can try and measure myself againt others (I KNOW) thats kindof impossible as its different for everyone but as i dont know anyone with ms I need some sort of benchmark…
The only thing I did manage to get at the appt was an offer of an MS Nurse which is obviously a good thing.
Hope that all makes sense - otherwise I guessed I may have answered my own question…!!
Thanks for reading