I have tried to send you a private message but for some reason, it just won’t let me
Wow! Reading your post is literally like reading my experience (the only difference being that I could move my foot downwards just struggled brining it up and it resisting after a certain point).
Like you - this has occurred well after my first presenting symptoms - almost 18 months later but still no dx??!! Interesting that both our podiatrists felt it was mechanical, my first neuro wanted to give me botox shots as he felt it was the tendon that needed relaxing (didn’t go for that, first time I ever have Botox will definitly be in the wrinkles on my face ), my neuro up where I am currently staying feels that I must have another 2 MRI’s before we can move forward and states that it is something to do with my CNS for sure. He states that its intermittent due to my body temperature and that as soon as my temperature rises, it hits me. I disagree with this as I have times where I know my body temp is pretty stable. I am minded to ignore him (for now) as everytime I have contact with him (mostly by telephone) he will not discuss anything until I have a new set of MRI’s. I have to pay for them myself as I am very claustraphobic (didn’t actually know that I was until my first one) and have to use the Upright Centre and at 1k a pop, I would be at around 7k by now.
It will be interesting to see what the PT assessment on Tuesday comes back with - will keep you updated. I feel very unheard by all neuro’s as this occured firstly in December after I had stupidly upped my running from a gentle 1k to 18k without stretching and really hurt my ankle and the second time after turning my foot on a cobbled street. Neuro’s just do not see this as related but I will post the link on here that I found that sets out extreme exercising (without warmup/stretching) can cause tendon issues which can lead to intermittent foot drop/slap. My neuro firmly stated that I turned my ankle due to the foot drop but I was there (!) and I know that I turned my ankle due to catching my heel inbetween the cobbles in a crowded market & I felf the pain of it!
Has your neuro given you any more details on the ‘problem with your calf’ is that it’s tight? Have you been given any exercises for it? Can you describe the spacisity? is it just in the luscle of your calf or also in your ankle/foot? I also had this but the exercises completley eliminated this and it doesn’t really re-ocurr unless I take a lengthy walk.
Were you pescribed the Balcofen after all other avenues were explored? I only ask as I have been made very aware by the podiatrist that neuro’s will often just lump everything under neurological conditions and he has dealt with 3 other non dx ms’y folk and manged to sort out their issues througk shoe inserts and exercises and identified that 2 of them had issues stemming from the knee. This is where I get scared from some of the forum members as I am sure I will get shouted down but I strongly feel its worth exploring when we are not dx as sometimes other things ocurr and not everything is a neuro/ms issue. Of course, it may well end up being so but if there’s a chance that it’s not then I for sure will examine this.
So, now that you have been given Balcofen, does your neuro feel that you have a confirmed dx? Do you mind explaining what a Balcofen pump is? if this different to the tablets?
Have you altered your footwear? I immediatley went to flat-ish shoes (no more than an inch block/flat heel) but honestly, I feel no difference with the flat shoe to the ones with a slight heel - I did when my calves were tight but now that they are no longer tight (I still do the stretch lunges 3 times a day - actually, when I don’t, I do feel the return of the slap) I feel the footwear does not seem to impact. I am sort of stuck in Scholl’s at the moment just to be on the safe side but had an evening out and work a 3 inch heel and felt no differnce during or the day after. I have bought a collapsable stick but haven’t had to use it as when I take what for me is a longish walk nowadays (usually Ikea as I’ve just moved), I just stop for a couple of moments when it happens then it disappears after that.
I cannot thank you enough as my experiences really fit your journey - I hope you continue to improve and the spacisity stops soon.
Hoping you have a great day and hope to hear back when you have time xx