When I was told I had MS, I’d been admitted to hospital, in A&E they said they thought I’d had a Mini Stroke or MS, I had no clue what either meant. I speant 2 weeks in hospital, being prodded and poked by every student doctor in the place as they didn’t ususally see neuro cases there. I had an MRI 1/2 way through the first week, middle of the next week, the consultant neurologist (I’d seen him once, telling me I needed an MRI) came over, stood at the end of the my bed, told me ‘you have MS, there’s no cure but there may be some treatment if you need it. I’d recommend that you go away and get on with your life but in the meantime I’ll pass your MRI over to anothe consultant who is in the middle of a trail, you might fit it’. He then walked off and left me totally dumb struck. The nurse on the ward wasn’t at all happy with him and told me that he should have warned them they could make sure I wasn’t on my own.
4 weeks later I was back in with another relapse, the Neuro said he thought this may happen but hadn’t wanted to worry me!!! When I finally saw the othe neuro (after 5 relapses in 6 months), he told me that it was inevitable from my scan that I would have very severe MS and should have been referred for DMD’s as soon as they saw the scan!
I realise that telling me at the start they I had it so bad may not have been the way forward but surely giving me some information about MS and what to expect would have helped me realise that life would never be the same again.