I had a dx confirmed of Relapsing Remitting back in 2017, having had varied symptoms since 2005. Earlier this year the Neurologist said it was likely that my MS has now changed to Secondary Progressive. I recently attended a vestibular clinic to investigate vertigo and it was determined that there was no balance issue connected to my ears and was most likely MS related. I was told the ENT clinic would likely not need to see me, yet I have received an appointment from them. Similarly, out of the blue I am being sent for a Nerve Conduction Test, presumably because I have ongoing issues with altered sensations, numbness and neuropathic pain. However I’m puzzled as to why this wasn’t done years ago, and if it shows that there is a reduction in nerve function, whether there is anything they can actually do about it, or is it another case of having the problem confirmed but no treatment (which has been the story ever since my dx). It seems pointless expending time and energy going to these appointments for no reward. Like a tick-box exercise.
Not sure what I’m after here with this post. Maybe just to offload. Find out if anyone else can relate….
It could be as @Hank_Dogs said or it could just as easily be what you’re thinking too @Willowtree . I’m sure that many people on the forum have had these tests with no specific treatment offered. As to sounding off.. that’s par and parcel for the course and is perfectly acceptable here. As too the nerve induction tests I had that many years ago as one of the tests they did before my neurologist diagnosed me with ms. The vertigo is something that I’ve been suffering with recently. So far I haven’t fallen over but, it’s been a close thing at times. Some days it only happens a couple of times and others it happens time after time.
Are you on any DMD treatment? If not that might be something to ask your neurologist. Not so much choice if your ms has changed to spms but still might be something available for you. Wishing you well, for whatever options that there is for you.
That’s so strange I’m in exactly the same boat I have secondary progressive MS ( no new lesions for 4 years and no DMTs) I have horrendous balance issues and vertigo The neurologist suggested a referral to ENT to check the vestibular pathways ( that was last may) and I decided not to bother and somehow felt it would clear up It hasn’t, it’s worse and I just keep falling over I’ve been checking out the tests on chat GPT and I think they look grim and fear going through them just for them to say “ there’s nothing we can do)