Just thought I’d put a few things down - things I’ve noticed , especially with work colleagues
They know I have recent diagnosis of MS , but they don’t really understand what it is , or how its treated.
Do I expect them to ? no, not really, but as I’ve been there 12 years and know most of them on a personal level, I thought they would have been better informed…I know I would want to be if it was the other way around…just to show some knowledge
They know I’m having DMD and have had 2 infusions, As I do lots of running, and most ( not all ) of my symptons can’t be seen, some people have even asked if it’s true
If you tell someone you have cancer and are having Chemo - people totally understand what that means and they know where to " File " when I tell them I hve MS - they say, oh - where is your wheel chair. My boss even suggested that I woul be able to use the Invalid toilet soon !
What do you say to a comment like that ?
The same person even said that with the running I do - there can’t be much wrong with me - So, I offered so swap !
He can have my MS …if he wants
I try not to get annoyed about it and put it down to ignorance , I don’t want pity
just want people to be better informed
now I’m of to the shops