Hi Hope everyone 'doing ok'.
Would appreciate peoples opinion....
I have been on Tysabri for a year now and understood the risks of PML. I have now shown posotive for the JCvirus and although I thought it through thoroughly before starting the treatment 12months ago and said the result wouldn't make any difference to my choice as the benefits outweigh the negatives, somewhere at the back of my mind I am now starting to think about the risk more.
I am wondering if I should continue or stop treatment, particularly as the risk of PML increases the longer that you are on it (advised 2yrs+). But do I want to risk relapsing as bad as I have been before beibg onTysabri? I always say quality of life not quantity, but having the reality that you could be risking your mortality is making me think twice????
I know the only person that can make the decision is myself, but would like to hear from others on the subject. Also, do any of you know of anyone that developed PML?
Thank you for reading - Equus