Hi, following on from my appointment with my consultant, he has recommended go onto tybrasi (forgive my spelling!), i have been informed by him and read up on the drug and the possble danger involved with it but i am willing to give it a go as i believe any benefit may outweigh potetial risks.
I am just wondering if anyone has any feedback on their own experience of the drug, eg benefits, positve/negative feedback?
i guess i’m just waiting to get started on it and want to know both sides of taking the drug.
I’ve seen so many people at Charing Cross Hospital have great results. I felt good on it fatigue went and I could feel legs getting stronger on their own. Even my eyes went crystal clear did not need to wear glasses for driving etc, though MS infusion nurse said Tysabri had nothing do to with it and vision went back to soft a month after I stopped LOL
But sadly I had to come off it after 5 months, wish I could have stayed on the stuff.
Until hick up no side effects only slight headache after 1st infusion that was it.
Hi tango, daughter has been on it for 3 months and the difference is very clear. Was terrified of the side effects but she is jvc negative and she was relapsing every month that I felt we had no choice. What a difference to her. I am still scared and worried about it but she is getting her life back. Click on my name if you want to read my previous post on this and you will see how bad things were. No side effects for her so far. Lx
Thanks for the feedback, it is appreciated!! i am going into the treatment in a positive frame of mind so hopefully it will be a success!!
if any side effects occur iguess these will have to have o be tolerated if my conditon is improving or remaining stable,i will have t monitor them!!
Thank you once again for the feedback!