Well i am absolutely chuffin` gobsmacked! i can`t believe what i`ve just been told!
You know I`ve been waiting for an appointment, following a referral to a top MS man in Leeds.......after 13 years of being chuffed about by 13 neuros.
I rang Leeds today to ask if my referral had arrived. I had rung twice previously and was told it hadn`t arrived. So I had to do some chasing at Halifax hospital.
So today I was told the referral had arrived and that Dr Lily had discharged me back to my GP. What? I asked how could that be as I haven`t seen him yet? It was repeated and i was advised to speak to my GP.
WTF???????????? I feel as if I`ve been kicked in the stomach and the door at the end of my long journey, has been slammed firmly in my face!!!!!!!!!!!!!
I`ve been ringing my GP, but can`t get an answer as yet. i`ll keep trying.
I`ve also rung the MS nurse, but had to leave a message on her ansaphone. I dunno what to do next.
It looks like i will never know what is wrong with me. Got my wheelie and hoist etc, so just get on with ,living without the label I so desperately want.
I know I am not alone in that, as there are lots of us with huge ? on our heads.
Oh well, that`s that I guess.