Hello everyone,
I am writing to ask advice please. I have been diagnosed for just over a year, and at times I still struggle with this. Sometimes I feel so positive, while at others I feel like screaming.
The thing I find hard is how tired I feel at times, sometimes even after doing so little, so tired it feels like its even effort to speak. It comes on so quickly, I can feel OK one minute and then the next it feels like I’ve hit a wall.
Any advice would be great. How do I cope with this?
Hi, Fatigue is a major player in MS and unfortunately impossible to beat. When it hits me, everyday I sit down and within minutes I’m sound asleep. I’ve now found when you start to get that feeling, sit down and rest because if you try and work through it you just make everything feel worse. Hope this helps. Janet x
currently, since January stricken by optic neuritis. 4 days in hospital, but now at home. No improvement, still very blurred vision, no colours. Also: no neurologist or medical care to follow up stay in hospital…feeling pretty desperate.
I do try and rest when I can, sometimes I try and convince myself I’m invincible and that I can still do everything.
Its hard. Going to have to make some lifestyle changes I guess,
Thank you Janet.
Gingerlil I do hope you’re alright. Do you have a phone number for your neurologist?
Fatigue is the worst aspect of MS for me, even though I have many other symptoms. It’s so hard to explain it to anybody who hasn’t experienced it. It was the biggest contributing factor in my decision to give up work last year. To begin with it felt like giving in, but I’ve realised its just something that was right for me in coping with my illness. I’ve also had to learn to rest when my body tells me to, which can be very hard when you’re used to being a busy person. I recommend speaking to your MS nurse about it too. Kaz xxx
I do the same as Kaz-x- I’ve learned to rest as soon as I get the feeling that I’m tired. I agree, the tiredness is the worst part, it stops a lot of what I would like to do. I had to stop working, which upset me a lot at the time as I loved my job, but it was impossible. It takes practise to learn to feel the tired signal, then stop and rest. Hope this helped.xx
My partner usually recognises that I need to rest before I do 
Kaz xxx
Thankyou. My husband recognises it before I do also. I am very busy, I work full time and while its a desk job I get mentally exhausted, then there’s the house and the girls…
I always try and plan a lazy day if I know if got a busy day coming up.
I don’t have a ms nurse at the moment but will speak to my consultant. My next appointment is in three months.
I’m going to speak to my boss today as well.
Thank you all so much for your support.