I’ve just finished a 5 day course of high dose steroids. (I actually have the distinction of the label Relapsing Progressive MS nowadays - just unable to take DMDs as too disabled and have in any case run out of DMD options!)
This course of steroids could not have come at a worse time. The weather on the South Coast (Sussex anyway) has been bbbblisteringly hot. Sleeping would have been difficult even without the methylprednisolone to interfere.
So, due to steroids, heat, and general intestinal discomfort (another tale for strong stomachs only!!) I’ve been averaging about 4.5 to 5 hours of very fitful sleep each night since Wednesday last week.
During the last few days though, I’ve been living with:
'I can’t seem to face up to the facts
I’m tense and nervous and I can’t relax
I can’t sleep ‘cause my bed’s on fire
Don’t touch me I’m a real live wire’
(Resulting in me virtually becoming a ‘Psycho Killer’ by Saturday - a little nod there for Caroles Music thread! - Apparently I had become a nasty tempered old witch - that was not actually voiced by anyone in my hearing, but I know it was thought ! And true!!)
Somehow, I’ve managed to: clean the bathroom, make pesto, make Caesar salad dressing, clean the kitchen sink (and the worktops), shred a load of personal bits that have been waiting for the shredder for weeks, trim the frayed bits of my favourite cut down jeans, depilate my hairy legs (honestly - they’ve needed it for a looong time!), shave and grate a big block of Parmesan for the freezer, do some more chopping and bossing around of lovely husband to make nice meals (that were inedible because it was too hot), phone and send emails to many friends. Plus finish reading a couple of books.
Who knew you could be this tired, this hot, this moany and achieve so much? Yesterday was day 5/5 of the course. Today I’m still wired. By yesterday the edge had worn off my nasty tongue (so I suspect I was a little nicer to live with!). I’m just hoping that tonight I can sleep better, with just the hot weather to contend with. Then tomorrow my house can revert to its normal state of semi-squalor!
Just thought you might be interested in the (should have expected all of the above, it’s not as if this was my first course of steroids, I’ve had MS for 23 pigging years!) sorry state of my 'roid rage.
Oh, and the relapse seems to have responded a tiny bit. (Complete side issue, my ongoing orthopaedic pain caused by the broken femur and associated pins and plates in hip and knee has been pretty much non existent for the last week of Mediterranean heat!)
Hoping you’re all doing well, coping with the heat, the thunderstorms, the horrible rain that’s promised for some places that could really do without, and the ongoing problems caused by bbblloody Covid and social distancing. Keep safe, keep each other safe, stay away from overcrowded places (like the beach down the road from me!) and stay well.