A few months ago, I knew very little about MS but when all of my symptoms started in October last year, I somehow knew I had it! It’s safe to say I now know a lot more and the forum is particularly helpful so thank you!
I saw the neurologist for my MRI results a month ago and he showed me the lesions on my brain and spine and he diagnosed it as RRMS. He has referred me to an MS specialist and last week I saw the MS nurse who was brilliant and answered my long list of questions the best she could. She told me tell the DVLA and that we were treating this as a full diagnosis of MS until anyone says otherwise.
The first neurologist I saw believes I have had at least two relapses since October and I am currently suffering with Lhermittes (apologies if that’s not not the correct spelling)
But I suppose my concern is, is the specialist going to agree? I already know I have lesions in two different areas, different areas in the brain and different areas of the spine! My neurologist thinks there has been more than one relapse and from my symptoms, I very much agree but will the specialist agree? Is that going to be enough?
I suppose my concern is that I’m very much trying to come to terms with the idea of having MS and I really don’t want to be left with a diagnosis of CIS and no treatment for something that since October has really had a life changing affect on me. I of course don’t want MS but I also don’t want to feel completely out of control of this situation.
The thought of having more tests and more waiting is just exhausting! After all of the evidence so far, I still feel very much in limbo which also feels quite silly considering the evidence we have so far!