The MS scrap heap

[Inactive_User]

@hcd

Hi, My husband died from Cancer in May, I managed to infect a cut on my toe and spent two weeks on antibiotics, I couldn’t put any weight on my left foot, had a fall, and now have carers…sorry, support workers…coming in twice a day. I saw my neuro for review at the start of June. She was running an hour late. When I got in to see her, the first thing she asked was “Have there been any major changes since I last saw you?” at which point I burst into years. When she realised she wasn’t going to get much out of me she said she’d call me back in a few months and get the MS Nurse to come out and see me. I was then bustled out of the room. So, yes, I well understand that some neuros have the subtlety of a brick. When I was first diagnosed back in 2007, my then neuro told me to stop crying because he needed to talk to me! On the plus side, the district nurse discharged me yesterday because my toe/foot looks a lot better. Now to strengthen my leg muscles up again which have turned to jelly as a result of being sat on my backside in a wheelchair for 6 weeks. Being on my own now with two boys has made me more determined to get some health back. When others are around to do things for you, it’s easier to just let them do it, but it turns you into a vegetable. It turns you what others expect you to be like. Time to break the mold. Heather

Hi Heather I am really sorry to hear you have lost your husband and I hope you and the boys are doing okay.

You sound to have a great fighting spirit (like Boudica herself!) and I wish you well.

As a long term wheelchair user of 14 years, I know what you mean about other folk doing everything for you…I tell them to allow me to do what I can for myself, or I could turn into that vegetable…what a sad thought! No offence meant to anyone there.

luv Polx

[hoppity]

@Tracyann28

Hi Hoppity!

Thanks for ‘spreading the love’.

I’m quite happy to sit on the MS scrapheap as long as everyone is smiling

Tracyann x

Tracyann I tell everyone to keep smiling it confuses people and I love seeing their faces when they are thinking why is he so happy sitting in that wheelchair.

[Inactive_User]

@Blossom

Hello Cath

Don’t worry about me, I’m ok. I have a supportive gp and family. It’s other more vunerable people that I get angry about…I’m in contact with Greg Knight our MP regarding this matter.

It’s the hospital trust that have made this decision, not the Doctors/nurses who care for patients. Unfortunately, it all comes down to money.

xx

Hi Noreen,

That is outragous that you can’t get the help you need. I was just thinking why don’t you design an online petition at the parliment website also tell everyone on this forum and I guarantee you that we will sign it for you.

In order to discuss it in parliment they have to obtain 100,000 signatures.

I am willing to help you get all the help you need I hate seeing you go without.

Robert xx.

[Inactive_User]

@Blossom

Hello Cath

Don’t worry about me, I’m ok. I have a supportive gp and family. It’s other more vunerable people that I get angry about…I’m in contact with Greg Knight our MP regarding this matter.

It’s the hospital trust that have made this decision, not the Doctors/nurses who care for patients. Unfortunately, it all comes down to money.

xx

Hi Noreen,

That is outragous that you can’t get the help you need. I was just thinking why don’t you design an online petition at the parliment website also tell everyone on this forum and I guarantee you that we will sign it for you.

In order to discuss it in parliment they have to obtain 100,000 signatures.

I am willing to help you get all the help you need I hate seeing you go without.

Robert xx.