Apart from the obvious one, the cost. Here is the big one, Suppose you take it and it works, it improves your walking, toilet problems, etc. But it doesnt improve them enough for you to resume work or trying to find new work but enough so you can comfortably walk over 20 meters so you lose your mobilty car. Then if it improves other things just enough you lose any sare element claim as well, then of course esa.
So you may find a way to pay for it whilst on esa, dla/pip by cutting back on whatever . Then they reaccess you and stop your benefits and then your back on jsa and totally unable to pay for the medication and your health reverts back to what it was or worse.
I wonder what the dwp’s stance is on this. That the only reason you can walk better is because of a drug but once they remove the benefit that allows you to pay for it then you would have to claim again !!
Any solutions ??
Ive posted anon for obvious reasons, I suggest the replies may consider doing so as well !