if i may, i would like to take a few sentences to outline the situation first.
My 48 yr old brother has severe MS and dementia and lives in a care home.
Due to reasons i legally feel i can not go into, he developed chronic pressure sores on his behind, thigh and heels and although he is now receiving the care & attention he requires (he had previously been in a care home shown on Panorama) from the excellent care home where he now lives, he is confined to bed 24/7 due to these and his rapidly developed dementia. He also has to have a peg feed, catheter etc. In addition to this, he brings his knees up close to his chest (i understand this can be quite common?).
We want to bring some sort of quality back into his life, as he often has good days and he alsways liked to be outside, enjoy the sun on his face, go and watch his favourite football team play etc. so we are looking for advice as to how we can make this happen.
We (being myself, sister, parents) have discussed this and was wondering if anyone knows if it is possbile to have a wheelchair modified whereby he can go out, travel in a vehicle i.e. adapted suv.
We have looked into hiring a box at the foolball stadium so he can watch the match from there, but it’s the getting to the place and the care he would need on route and at the match (it’s a 2 hour journey). we are thinking of purchasing a special type of wheelchair and was wondering if anyone knows of such a service, whereby they would consult with the care home nurse to establish Michael’s condition and his requirements. we have spoken to the care home and they’ve agreed that we could have a nurse accompany Michael (as his peg feed can only be administered by a nurse) and the possible need for a carer to help and we would arrrange for cover at the home. As Michael needs to be turned in his bed quite frequently, ideally the wheelchair would either need to remove the need for this or facilitate Michael being repositioned with ease.
If anyone could suggest how we can go about this we would be very grateful.
(this wouldn’t be a one off trip, as we also would like to take him to the cinema, motorbike racing - his other passion and other outdoor activities where he can sit & watch)