Hi there , my friend has been recently diagnosed with relapsing remitting ms and had her first phonecall with an ms nurse. She contatcted me after the call and was so upset , i was really shocked. The nurse was very negative, seemed unable to be able to advise on dmt meds or much else really. I advised her to change to a different nurse if she can, does anyone know how she goes about doing that ? Very grateful for any help - thankyou 
MS Nurses don’t prescribe the meds. They are, however, the best conduit to your MS Consultant. Contact the nurse again and ask, persistently, for your Treatment Plan. You should have one and don’t take no for an answer.
So in the area where I live, there is only 1 MS nurse, I live in Huddersfield, to see a different 1 I’d have to travel to Halifax, which ok isn’t a million miles away, but its a pain to get to. When I was 1st dx’d and they hadn’t established what type of MS I had, my nurse referred me to Leeds to see if I qualified for DMT, sadly for me I was then told I’d gone straight in as progressive. I’m sorry your friend feels that she isn’t getting the support she needs and personally I’d try speaking to the nurse again and explaining her fears, can’t do any harm, good luck to her.
Jean
It’s the neurologist who needs to talk with her and decide which dmd to choose based on her m.s history.
They always have a secretary, so this is another way in. There’s always the dead pan miserys you meet in life, so don’t let that put you off the end game.
Sorry yes I know that, but for me it was the nurse that referred me, as in Huddersfield the neuro didn’t do it, MS was his 1st speciality, epilepsy was, so hence the referral to Leeds.
Jean
Difficult. As I understand things, there aren’t enough MS Nurses. Do you know how many are in your friends health region? As others have said, MS Nurses are limited in what they can advise on and I’m sad to say that in practice they can’t do a great deal. They provide a point of contact and monitor how you are getting on - referring you to the consultants if things worsen , new symptoms etc or making suggestions on how you might address some side issues ( bladder etc) and referring to GP to check that symptoms don’t have other causes
No need to be sorry Jean, as my reply was aimed at the poster, so they have a clearer understanding that’s all.
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