Hi
I was dx with ppms 13 years ago, showing 2 major lesions on sc plus a faint one on brain.
Is this similar to the rest of you? Ppms seems more like an awful spinal cord disease, so much tougher to live with than rrms.
Would be interested to know if any folk with a ppms dx have a clear spinal cord? Thanks.
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I have a few spinal cord lesions and some on my brain.Think the spinal cord ones affect walking for me and hand strength.But it’s irrelevant.I am deteriorating but try and keep my strength up by exercising in water and low circuit classes and walking.Not a lot now but I use FES device from NHS as I have bi lateral foot drop .Do what you can to try and get a bit out of each day .Plan for the future, research treatment s do therapies etc .Try and find leisure activities that you can do and enjoy and meet people who can relate to your condition.Get rid of others out of your life .Have carers and make sure all of you have benefits you are entitled to.Its terrifying to think of the future so plan for stuff but try and live today only.Whats good about today? . I struggle to be positive but it’s the only way .
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