After my marvellous fish and chips on beach I have virtually slept for three days. Today I am seeing consultant and been awake since four. I had a funny turn last night, I showered and sat having a shave and went a bit wobbly Half way across landing had to get Heather to grab wheelchair I was using my Zimmer and knew I was not going yo make it. I sat in wheelchair with cold flannel on head not sure if I was feeling sick or just overheated? Eventually felt OK to get into bed. Had 4 hours sleep and wide awake. It must be the excitement of going to have my. MOT. Well I will let you all know what it was like when I get back. I do know I don’t like Gabapentin one week of it has been enough for me.
Wish me luck, if I am prescribed a miracle cure I will let you all know
Don that’s me all excited I hope I don’t wet myself oh I can’t I have got a catheter SILLY ME
Don, it might have been low blood pressure. Did you start to get tunnel vision and buzzing in the head? When I’m at a physical low through illness or over doing things my blood pressure can drop and I feel awful. I have to lie down, or I can pass out.
Good luck Don! Sound like a meltdown to me. I get them. Like someone has pulled the plug out. Can’t even talk. They are quite scary I find. Sorry the Gabapentin wasn’t a success. Have you tried Amitriptyline? Pat xx
Don I agree, you must have needed the rest. I’m quite relieved to hear that someone else can sleep for the best part of 3 days. I have episodes where I sleep for days then have dizzy spells afterwards. Like Kev I think it’s a blood pressure drop following extreme fatigue. Hopefully with a good rest you’ll feel better soon. Good luck with the MOT, please let us know you get on. It’s a pity the Gabapentin doesn’t agree with you, I rely heavily on it but there are alternatives.
Saw him earlier and I am getting a scan to see the lesions and how they have progressed since my last one 15 years ago all in all that was the hi lite of the visit that and the conversation with the two young lady students. All in all not a lot of good, stay on the Gabapentin for another couple of weeks then see the MS Nurse. If the next two weeks are anything like the last week I will be ready for the knackers yard. If the Gabapentin has not worked next stop will be Baclofen pump but people I have spoken to recon it will be
Don sorry to hear your appointment didn’t give you the reason to celebrate as we all wish they’d do. At least they’re scanning you again to see what’s going on. Hope the Gabapentin makes a difference too.