Thank you.
hiya
ta for update-i was wondering how she was doing.
ellie
1 Like
She’s still very shaky and cant walk unaided, also still has bladder and bowel problems, but her personality is back.
She took a single, very fragile step using a “steady frame” the other day and her reaction was like she had just won the lottery.
So pleased your sister is making progress. Thank you for the update. Sue x
1 Like
good news - all good wishes to you both,
[quote=“Ssssue”]
Strange that your post comes up again today. I keep worrying about your sister. How’s she doing? Any better? I do hope so. I was talking about her with my husband and it’s made us start talking about getting a Lasting Power of Attorney so that if anything dreadful happened to me he’d be more comfortable making decisions about my health.
She remains in my thoughts. But for the grace of something all powerful … her situation could be that of any one of us.
Sue
[/quote] LPA has two branches - the caring side and the financial side.
I think I’m right that the LPA has nothing to do with a Do Not Resuscitate directive - not sure if that is what you were referring to - which some people have on their records. This is done at the GP’s.
Oh fabulous news jactac. I’m so glad to hear she’s coming back to being herself. What a frightening experience. I really hope she continues to improve over the next weeks and months.
Oh and in response to your earlier question Krakowian, an LPA is quite different to a DNR. It’s just to give your nearest and dearest the right to make decisions, either financial and/or health related. It doesn’t mean necessarily that they’d agree to a DNR. I already have an Advance Statement.
Sue
So it’s now over 4 months since my sister was admitted to hospital with a devastating relapse, and it’s been a long hard fight for her, and her husband, who it must be said has been there every minute for her.
For a long time all she could do was twist her right hand wrist ever so slightly, she couldn’t even speak, eat any sort of foods or use the bathroom.
Every limb, except her right wrist was affected.
She is still in a rehabilitation hospital, and having both physical & speech therapy, she can walk, well shuffle along with a zimmer frame but not very far, she can now eat normally and her speech has returned.
Unfortunately her bladder and bowel functions are still not right.
The consultants have said she will be in hospital for about another 2 weeks and will then be allowed home with follow up physio at home and at the hospital as an out patient.
Theres also talk of having house adaptions .
It will be great to see her home, but this has really highlighted how devastating MS can be when it strikes hard.
3 Likes
Great to hear some good news,
Your sisters husband sounds like a proper diamond
I hope that things continue to improve
Mick
1 Like
I am so pleased that your sister is making progress and hope that this continues. It will be lovely for her to return home but this will bring new challenges as it will be hard work for her and the family to manage without the support of the ward staff. I wish you all well. Sue
1 Like
I was wondering how she was doing. I’m so glad she’s doing better. Relapses like that one are devastating for the whole family. And truly terrifying for the individual to live through.
I really hope the physio continues to help with her walking and that she finds ways to manage her bladder and bowels.
Hopefully the adaptations to the house will enable her to return to some form of ‘normal’ life. I bet she is half frightened to go home and desperately looking forward to it. It’s a scary time, to be thrust back into everyday life without the backup of 24/7 nursing staff.
Mick is quite right, her husband sounds like he’s a total rock.
Sue
1 Like
She has had the odd “home stay” on weekends, basically to get used to coming home.
As you say Sssue its going to be a long journey and I guess at times frightening.
Over the years I havent always seen eye to eye with Mark (her husband), I found him a bit controlling, but I think in reality he’s been more caring than controlling, it was just that perhaps I was reading the situation wrong, a bit of the big brother syndrome, looking out for his sister.
Thank you all again for your kind words.
Really glad your sister is slowly recovering and on her way home.
1 Like
I am so pleased your sister has seen some improvement,hope she continues to gain strength as time goes on,thanks for keeping us informed,sending lots of love and (((((hugs))))for her.
1 Like
hiya
glad to hear she is stronger. the harder/est work is still ahead when she gets home but sounds like she will have great support along the way. i wish the best for you all involved.
ellie
1 Like
HI,
I know it is old thread but my wife is in the same situation like your sister was.There is a hope for my wife after reading your story.
I hope your sister feels much better now.
Rgds
Woj