Hello, I had my third (or second - basically my first full dose!) of Ocrevus at the end of September. Although my usual symptoms have remained the same, only flaring when tired or stressed, I’ve developed some new muscle twitching in my legs and torso since my last infusion - nothing big but tiny muscle spasms which are visible but not debilitating. I’m currently waiting for MRI results to see if there’s been any progression since starting Ocrevus, but not sure if I should be concerned that I’m getting some new symptoms?!
Has anyone else experienced this or is this just part and parcel with MS?
thanks in advance.
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Hi @airdrop-geckos.4d I can’t comment on whether it’s the DMD that’s causing you your new symptoms but, for peace of mind.. your mind, itmight be worth checking with your ms nurse or neurologist if it’s a possibility. Unless of course it is in that list of dreaded side effects! Then you should probably also mention it too, to your nurse, neurologist or GP. Wishing you well on Ocrevus and that it keeps you as stable for as long as possible.
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Thank you - I checked with the MS nurse who isn’t convinced it’s related to the MS but is requesting bloods anyway to rule out any infection.
But after a 2 month wait I’ve also received my latest MRI results which shows more lesions - thought to likely be related to pre-infusion activity…my MS was very active last year. I’m hoping to be able to see my neurologist at some point but they’re not very easy to get hold of are they!
Neurologists, GP’s, ms nurses, they can all be difficult to pin down at times. Perseverance I think, is what’s needed @airdrop-geckos.4d. Hopefully you’ll see someone and get the answers you need soon enough.