Sorry you’ve joined the club officially, although it sounds as though you have been an unofficial member for a little while now. A difficult time for you - it must all feel very strange.
Good wishes from here.
Alison
Hi Bassett Mum,
Glad you have answers at last. Sorry it’s confirmed MS.
Snowqueen x
20 years, good grief! I’m sorry you’ve had to join our gang, but glad you at least didn’t have to live in limbo land for over a year.
And at least you’ve learned the worst. Now you can get started with some proper treatment. If they decide its relapsing remitting, you will be offered a disease modifying drug. At least these can reduce relapses by up to 50% (the first line drugs like Tecfidera anyway).
Sue
Gosh your so lucky to get a diagnoses on one MRI. I have had lots of MRI, and LP, and VEP and spent a fortune on private neuro before I finally got told MS. Even with positive VEP, and lesions on spine i had to wait a few years, something to do with relapses etc etc… Hope they start you on meds soon.
It was a bit surreal to be honest.
He showed me the MRI and there is a huge white blob in the middle of my brain which is rather disconcerting there are also a few smaller ones as well.
Luckily I am still feeling fine and apart from the hand tremor and slightly wonky leg no other problems.
Yvonne
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20+ years in and just a hand tremor and slightly wonky leg to show for it? Bassetmum, I think you can draw quite a lot of comfort from that. Long may it continue.
Alison
I can track mine back about 14 years BUT recently remembered an incident that occurred about 22 years and I believe it may have been my first relapse! Hindsight is amazing
Unlucky that you joined our club but I’m so glad to hear you’re not in the dark anymore
I was referred to a neuro after a spinal MRI and when they did the brain, my husband even joked about my marshmallow, cos yes, it was HUGE. Having seen a recent one, there’s a lot of scar tissue but the big lesion has resolved.
Fingers crossed for you
Sonia x
I have been trying to think back but nothing comes to mind,I said to the Registrar yesterday that I am ridiculously healthy.
I have lived in my present area for 15 years and prior to this can count my GP visits on one hand.
Yvonne
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My neuro said you can have the worse lesions with the less symptoms so hopefully if they give you DMD you will stay healthy and strong. MS doesnt always cause terrible disabilities far from it. Its wierdly enough the less lesions sometimes can do the worse damage depending on where they are. Mine are on my spine. I had two show up over time and they have caused rotten problems in my legs. I am actually quite healthy overall if that makes sense, just mobility rubbish and pain.
I see you are on propananol? I was given that for my blood pressure, and then was told its good for tremors. I do get some but not much.
My friend has had MS for 30 years and like you she had large blob on brain, and still is active lady even at 62, and goes all over the world. Her main symptoms are exactly the same as yours.
So there is every chance you will be the same. xxxxxx
Hi Sonia, i had similar. 1981. I remember it. Every morning i would wake up with dead arm and hand in my left. It drove me nuts. It wasnt the normal sleeping on arm syndrome, it lasted longer during the day. I spoke to my GP about it and he told me it was because i smoked 5 cigs a day…I kid you not. I was the right age for onset of MS 34.
Then i had issues with my right leg and foot, and was told it was sciatica. This was 1981 too, and i had to travel to Kenya to live. It was a nightmare. No xrays showed anything wrong with my leg.
It went like it came both of them. Then nothing not really just vague things going on until my first blindness in 2000.
Even that got ignored lol.
When i spoke to my neuro about the incidence in 1981 he said if i had MS that long i would be more disabled…well i dont believe that, as now i have met loads of people who have had it since 19seventies, who are less disabled then I am.
Makes you wonder though doesnt it. Its funny as from about 1981 to 2000 I must have fallen down the stairs 4 times lost balance and broke something, bones. I am sure the doctors thought i was a drunk ha ha.
Glad your big lesion resolved itself.
Personally i think we are born with MS, and it can lay dormant all our lives until something triggers it off. I think mine was the constant vaccinations when we were going abroad in the services, as my immune system was constantly under attack.
Funny enough my first symptom came only a few months after my Yellow Fever vaccination for Kenya.
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I don’t understand how the Neuro can decide you’ve had MS all that time when you’ve had no relapses. Given that MS is usually diagnosed after 2 relapses, surely he can’t diagnose retrospectively back to a period when you had no relapses.
Sue
I have no idea Sue but that is what he said.
They did all the Neuro tests on me had a chat then showed us the MRI which clearly showed the huge white blob and a couple of small ones as well.
I have been concerned for a while that I have a lot of symptoms of ms and may have been misdiagnosed with fibromyalgia. I have been trying to talk to gps about this and I feel like I just sound like a mad woman… every time I have to go for a medical issue. It’s slightly different from the last time I see different people. They are telling me that one thing that eliminates me from ms is pain and ms doesn’t cause pain. Which to me everything I read says it does from muscle spasms and nerve pain. Help am I wrong what do I do I feel like no one is listening 
Hi Trudy
You have replied to a post from 2015. I suggest you start a new post with your issues to,get replies to you for your problems
Min xx