Hi
You probably haven’t realised, but you’ve joined in a thread that’s about 4 years old, so you may not get any meaningful replies.
If you want to start a new topic, just hit the New Thread button, give it a title and post your thoughts. If you want replies, it helps to form some kind of question.
Welcome to the forum anyway. I’m in the same boat as you. SP after 20 years of relapsing remitting.
Sue
I’m new on here, and I can see this is an old thread, but I’ve got to try and start somewhere. I have SP my sister had rr for many years before sp set in and it eventually was the end of her, in this terrible year we’ve been having. Bill left us on February 2nd with Covid pneumonitis and advanced ms 
. I was struck down in 2016 over the course of five days, from a numb big toe to the whole of my left side being numb with no signs whatsoever before this. Once they sorted my medication out things became easier, but atm I am having a major relapse despite a very recent mri showed no change in my lesions. Do any of you take Siponimod ?
I have had SPMS for 13 years diagnosed Feb 2008 can hardly walk at all got a power wheelchair 2 years ago I am now 66 my Daughter who us now 40 got married 1year ago. I have been married 47 years ago my hubby is my full time carer would not be able to cope without him.